Table 2. Data collection, instruments, and timelines.

Study variable	Target	Instrument	Baseline	3 months	6 months	12 months
Demographics	Caregiver	N/A	✓
Disability severity	Child	Functional Status Scale	✓
Social support	Caregiver	OSSS-3a	✓
QOLb	Child	Ellzey CMCc QOL Questionnaire	✓	✓	✓	✓
Health literacy	Caregiver	Brief Health Literacy Screening Tool	✓
Stress	Caregiver	ZBI-12d	✓	✓	✓	✓
Self-efficacy	Caregiver	Self-Efficacy Scale	✓	✓	✓	✓
Satisfaction	Caregiver	Parent Satisfaction Questionnaire	✓		✓

^aOSSS-3: 3-item Oslo Social Support Scale.

^bQOL: quality of life.

^cCMC: children with medical complexity.

^dZBI-12: 12-item Zarit Burden Interview.