TABLE 4—

Decisionmaking and Volition

	Percentage
Made decision to join her- or himself	94
Knew she or he could have refused if so desired	41
Degree of pressure felt from others to join the study
A lot of pressure	12
A moderate amount of pressure	2
A little pressure	1
No pressure	85
Felt pressure to join because child is sick	58a
Knew she or he could quit the study	65
Knew she or he could quit at any time	17b

^a53% specified that they felt “a lot of pressure” because of their child’s illness.

^bAsked only of the 25% of those who knew they could quit at all.