Table 1.
Critical Elements in Community-based Participatory Research (from Ammerman A, et al., AHRQ Proposal for CBPR Evidence-based Practice Review)
CBPR Implementation and Impact | ||||
---|---|---|---|---|
Research Element | CBPR Application | Community Benefits | Research Benefits | Research Challenges |
Defining the research question | Full participation of community in identifying issues of greatest importance. Focus on community strengths as well as problems | Problems addressed are highly relevant to the study participants and other community members | Increased investment and commitment to the research process by participants | Time-consuming, and community may identify issues different from those identified by standard assessment procedures or for which funding is available |
Grant proposal and funding | Community leaders/members consulted as a part of the proposal writing process | Proposal is more likely to address issues of concern in a manner acceptable to community residents | Funding likelihood increases if community participation results in tangible indicators of support for recruitment and retention efforts, such as letters of support | Seeking input from the community may slow the process and complicate the proposal development effort, when time constraints are often present |
Research design | Researchers communicate the need for specific study design approaches and work with community to design more acceptable approaches, such as a delayed intervention for the control group | Participants feel like they are contributing to the advancement of knowledge versus as passive research “subjects” | Community is less resentful of research process and more likely to participate | Design may be more expensive and/or take longer to implement. Possible threats to scientific rigor |
Participant recruitment and retention | Community representatives guide researchers as to the most effective way to reach the intended study participants and keep them involved in the study | Those who may benefit most from the research are identified and recruited in dignified manner rather than made to feel like research subjects | Facilitated participant recruitment and retention, which are among the major challenges in health disparities research | Recruitment and retention approaches may be more complex, expensive, or time-consuming |
Qualitative or formative data collection | Community members provide input as to intervention design, barriers to recruitment and retention, etc. via focus groups or structured interviews | Interventions and research approach are likely to be more acceptable to participants and thus of greater benefit to them and the broader population | Clinical and community-based interventions are likely to be more effective than if they are designed without prior formative data collection | Delays the start of quantitative data collection |
Quantitative data instrument design and data collection | Extensive cognitive response and pilot testing of measurement instruments before beginning formal research | Measurement instruments less likely to be offensive or confusing to participants | Quality of data is likely to be superior in terms of reliability and validity | Time-consuming. Possible threats to scientific rigor |
Intervention design and implementation | Community representative consulted about the most appropriate intervention approach given cultural and social factors and strengths of the community | Participants feel the intervention is designed for their needs and offers benefits while avoiding insult. Provides resources for communities involved | Intervention design is more likely to be appropriate for the study population, thus increasing the likelihood of a positive study | Time-consuming. Hiring local staff may be less efficient than using study staff hired for the project |
Data analysis and interpretation | Community members are consulted regarding their interpretation of the findings within the local social and cultural context | Community members who hear the results of the study are more likely to feel that the conclusions are accurate and sensitive | Researchers are less likely to be criticized for limited insight or cultural insensitivity | Interpretations of data by nonscientists may differ from those of scientists. Thoughtful negotiation is required |
Manuscript preparation and research translation | Members of the community are included as authors of the manuscripts following previously agreed upon guidelines | Pride in accomplishment, experience with scientific writing, and potential for career advancement | The manuscript is more likely to reflect an accurate picture of the community environment of the study | Time-consuming. Requires extra teaching and negotiation |