Table 1.
Ages 5–7 (n = 18) | Ages 8–12 (n = 31) | Ages 13–17 (n = 21) | ||||||||||
PedsQL™ Items | Patient Self-Report | Parent Proxy-Report | Patient Self-Report | Parent Proxy-Report | Patient Self-Report | Parent Proxy-Report | ||||||
Mean | SD | Mean | SD | Mean | SD | Mean | SD | Mean | SD | Mean | SD | |
Time 1 Scores | ||||||||||||
Total Score | 25.60 | 19.04 | 29.92 | 18.28 | 28.17 | 20.70 | 38.88 | 22.10 | 28.87 | 19.54 | 35.99 | 20.89 |
Emotional Distress Summary Score | 21.60 | 23.82 | 23.76 | 16.90 | 19.31 | 19.48 | 33.77 | 21.73 | 20.86 | 19.67 | 31.37 | 21.55 |
Anxiety VAS | 25.00 | 36.10 | 23.61 | 26.83 | 17.26 | 22.94 | 30.48 | 24.54 | 25.57 | 28.02 | 30.71 | 29.25 |
Sadness VAS | 22.78 | 35.45 | 17.83 | 24.04 | 17.58 | 24.22 | 38.39 | 34.67 | 15.00 | 17.39 | 30.48 | 27.15 |
Anger VAS | 2.22 | 4.92 | 7.22 | 11.40 | 9.42 | 16.59 | 15.23 | 20.22 | 6.90 | 13.82 | 20.95 | 24.52 |
Worry VAS | 36.39 | 41.33 | 46.39 | 26.33 | 32.97 | 36.52 | 50.97 | 29.62 | 35.95 | 34.77 | 43.33 | 32.07 |
Fatigue VAS | 38.89 | 41.50 | 39.17 | 35.16 | 54.19 | 35.59 | 55.32 | 33.96 | 46.90 | 35.93 | 44.52 | 32.94 |
Pain VAS | 28.33 | 34.13 | 45.28 | 34.75 | 37.58 | 35.91 | 42.90 | 34.27 | 42.86 | 30.72 | 45.95 | 31.37 |
Time 2 Scores | ||||||||||||
Total Score | 20.65 | 22.21 | 20.62 | 23.78 | 23.02 | 21.58 | 31.48 | 21.81 | 24.56 | 14.68 | 29.29 | 16.15 |
Emotional Distress Summary Score | 17.43 | 21.02 | 17.32 | 22.91 | 17.84 | 20.34 | 25.60 | 22.73 | 17.38 | 16.77 | 23.10 | 15.51 |
Anxiety VAS | 13.89 | 26.04 | 18.06 | 28.03 | 15.78 | 24.59 | 23.71 | 25.92 | 17.62 | 22.67 | 23.47 | 23.46 |
Sadness VAS | 22.78 | 33.96 | 20.83 | 33.62 | 14.68 | 25.91 | 22.10 | 28.04 | 15.00 | 18.44 | 19.52 | 17.60 |
Anger VAS | 3.06 | 3.89 | 6.11 | 10.23 | 10.32 | 21.68 | 20.48 | 28.59 | 5.48 | 6.87 | 15.71 | 22.21 |
Worry VAS | 30.00 | 39.78 | 24.28 | 28.03 | 30.48 | 34.98 | 36.13 | 29.12 | 31.43 | 28.95 | 33.57 | 27.21 |
Fatigue VAS | 27.78 | 35.45 | 26.94 | 32.36 | 35.16 | 32.42 | 47.58 | 36.67 | 42.62 | 28.18 | 43.57 | 25.65 |
Pain VAS | 26.39 | 37.57 | 27.50 | 37.54 | 31.61 | 32.54 | 38.87 | 32.63 | 35.24 | 25.37 | 39.76 | 23.21 |
Note: 0–100 VAS scores; higher values = higher symptom levels.