Figure 1  .

Questions added to the CQOL questionnaire to investigate the effect of taking daily tablets (A) and having regular blood tests (B). Scoring of the level of function, upset, and satisfaction was on a seven point scale, ranging from "better than children of the same age" (1 point) to "not taking any tablets" (7 points); "not at all upset" (1 point) to "extremely upset" (7 points); and "very satisfied" (1 point) to "not at all satisfied" (7 points).