Table 2.

 Demographic characteristics of participants

Variable	Age group 1	Age group 2	Age group 3	Total
	(x/8)	(x/19)	(x/16)	(x/43)
Sex
Male	5 (62%)	11 (58%)	8 (50%)	24 (56%)
Female	3 (38%)	8 (42%)	8 (50%)	19 (44%)
Age now
Mean (range)	33.5 (21,44)	49 (39,77)	61 (49,79)	48 (21,79)
Age at diagnosis
Mean (range)	15 (4,35)	18 (5,30)	41 (27,52)	25 (4,52)
Race
White	8 (100%)	16 (84%)	16 (100%)	40 (93%)
African-American	0	3 (16%)	0	3 (7%)
Religion
Catholic	3 (38%)	5 (26%)	5 (31%)	13 (30%)
Protestant	4 (50%)	9 (47%)	7 (44%)	20 (46%)
Jewish	1 (12%)	0 (0%)	4 (25%)	5 (12%)
Other/none	0 (0%)	5 (26%)	0 (0%)	5 (12%)
Relationship status
Married	6 (75%)	13 (68%)	14 (88%)	33 (77%)
Single	2 (25%)	3 (16%)	0 (0%)	5 (12%)
Partner	0 (0%)	2 (1%)	0 (0%)	2 (0.5%)
Divorced/separated	0 (0%)	0 (0%)	1 (6%)	1 (0.2%)
Widowed	0 (0%)	1 (1%)	1 (6%)	2 (0.5%)
Grade level
High school	0 (0%)	3 (16%)	5 (31%)	8 (19%)
Some college	3 (38%)	9 (47%)	3 (19%)	15 (35%)
4 years at college	3 (38%)	4 (21%)	3 (19%)	10 (23%)
Post grad school	2 (25%)	3 (16%)	5 (31%)	10 (23%)
Income
<$20 000	0 (0%)	4 (21%)	1 (0.6%)	5 (12%)
$20 000–$34 999	1 (12%)	3 (16%)	5 (31%)	9 (21%)
$35 000–$49 999	1 (12%)	4 (21%)	1 (0.6%)	6 (14%)
$50 000–$74 999	1 (12%)	5 (26%)	3 (2%)	9 (21%)
>$75 000	5 (62%)	3 (16%)	6 (38%)	14 (32%)
Employment
Full time	5 (62%)	8 (42%)	4 (25%)	17 (40%)
Part time	1 (12%)	2 (11%)	3 (19%)	6 (14%)
Retired	0 (0%)	0 (0%)	7 (44%)	7 (16%)
Unemployed	2 (25%)	9 (47%)	2 (12%)	13 (305%)
Affiliation
FFB	7 (88%)	15 (79%)	13 (81%)	35 (81%)
Support group	3 (38%)	8 (42%)	9 (56%)	20 (46%)
Family history of RP
Present	3 (38%)	3 (16%)	1 (6%)	7 (16%)
Absent	4 (50%)	10 (53%)	13 (81%)	27 (63%)
Unknown	1 (12%)	6 (32%)	2 (12%)	9 (21%)
Self identified as
Sighted	2 (25%)	2 (10%)	2 (12%)	6 (14%)
In transition	3 (38%)	2 (10%)	5 (31%)	10 (23%)
Visually impaired	3 (38%)	15 (80%)	9 (56%)	27 (63%)