TABLE 2.
Item Frequency Distribution, Phase II, Test–Retest I (T-RI), and Test–Retest II (T-RII)*
| T-R I |
T-R II |
||||
|---|---|---|---|---|---|
| Item | Phase II | T1 | T2 | T1 | T2 |
| Emotional | |||||
| Metastasis | 4.31 (1.20) | 3.39 (1.45) | 3.87 (0.99) | 3.74 (1.37) | 3.77 (1.43) |
| Cancer progression | 4.23 (1.20) | 3.10 (1.35) | 3.39 (1.36) | 3.87 (1.34) | 3.93 (1.34) |
| Family skin cancers | 3.52 (1.51) | 3.58 (1.34) | 3.77 (1.18) | 3.77 (1.36) | 3.84 (1.32) |
| Causal factors | 4.17 (1.28) | 3.45 (1.43) | 3.81 (1.33) | 3.87 (1.41) | 4.00 (1.21) |
| Frustrated | 3.17 (1.44) | 3.19 (1.56) | 3.65 (1.23) | 4.00 (1.32) | 4.13 (1.15) |
| Anxiety | 3.47 (1.33) | 3.71 (1.16) | 4.06 (1.21) | 3.74 (1.29) | 3.93 (1.24) |
| Future concerns | 4.67 (0.71) | 2.81 (1.51) | 2.90 (1.19) | 3.48 (1.23) | 3.48 (1.43) |
| Treatment working | 3.90 (1.22) | 4.00 (1.26) | 4.39 (1.09) | 4.32 (1.08) | |
| Subscale total | 3.94 (0.86) | 3.39 (1.08) | 3.68 (0.97) | 3.86 (1.10) | 3.93 (1.11) |
| Subscale α (95% CI) | 0.81 | 0.91 (0.85, 0.95) | 0.91 (0.86, 0.95) | 0.94 (0.91, 0.97) | 0.95 (0.92, 0.98) |
| Test–retest r, p value | 0.67, 0.001 | 0.93, 0.001 | |||
| Appearance | |||||
| Clothing limitations | 2.08 (1.33) | 4.97 (0.18) | 4.93 (.25) | Deleted | Deleted |
| Scar size, depth | 3.69 (1.26) | 3.06 (1.61) | 3.61 (1.45) | 3.65 (1.38) | 3.71 (1.24) |
| Personal attractiveness | 2.98 (1.36) | 3.55 (1.41) | 4.03 (1.22) | 4.06 (1.31) | 4.19 (1.14) |
| Embarrassment | 2.50 (1.36) | 4.19 (1.11) | 4.53 (0.68) | 4.29 (1.24) | 4.48 (1.12) |
| Other's questions | 2.25 (1.17) | 4.45 (1.03) | 4.84 (0.38) | Moved | Moved |
| Scar visibility | 3.46 (1.41) | 3.23 (1.45) | 3.58 (1.50) | 3.97 (1.33) | 3.94 (1.21) |
| Subscale total | 2.82 (0.99) | 3.91 (0.94) | 4.25 (0.75) | 3.99 (1.18) | 4.08 (1.10) |
| Subscale α (CI) | 0.84 | 0.86 (0.77, 0.93) | 0.82 (0.69, 0.90) | 0.92 (0.86, 0.96) | 0.88 (0.79, 0.94) |
| Test–retest r, p value | 0.79, 0.001 | 0.81, 0.001 | |||
| Financial/work | |||||
| Time off work | 1.77 (1.34) | 4.33 (1.30) | 4.46 (1.24) | 4.48 (1.09) | 4.45 (0.96) |
| Limits advancement | 3.33 (1.46) | 4.83 (0.75) | 4.92 (0.28) | 4.77 (0.67), modified | 4.71 (0.69) modified |
| Financial problems | 3.04 (1.56) | 4.93 (.25) | 4.81 (.57) | 4.39 (1.05) | 4.51 (0.85) |
| Work functions | 1.91 (1.27) | 4.87 (.57) | 5.00 (0.00) | Deleted | Deleted |
| Health insurance | 4.02 (1.43) | 4.07 (1.41) | 3.90 (1.59) | 3.94 (1.24) | 4.16 (1.16) |
| Subscale total | 2.49 (1.03) | 4.63 (0.60) | 4.47 (0.89) | 4.40 (0.81) | 4.46 (0.81) |
| Subscale α | 0.81 | 0.60 (0.31, 0.79) | 0.50 (0.08, 0.76) | 0.79 (0.64, 0.89) | 0.89 (0.81, 0.94) |
| Test–retest r, p value | 0.33, 0.084 | 0.84, 0.001 | |||
| Lifestyle/recreation | |||||
| Outdoor activities | 3.52 (1.38) | 4.06 (1.00) | 4.13 (1.20) | 4.35 (1.33) | 4.45 (1.06) |
| Types outdoor activities | 3.56 (1.41) | 4.38 (1.02) | 4.52 (0.81) | 4.58 (0.89) | 4.61 (1.05) |
| Interference with hobbies | 2.79 (1.40) | 4.48 (0.96) | 4.39 (0.99) | 4.81 (0.54) | 4.55 (0.93) |
| Constant sunscreen use | 4.08 (1.35) | 4.26 (1.00) | 4.06 (1.26) | 4.58 (0.81) | 4.55 (0.89) |
| Sun-protective clothing | 3.96 (1.33) | 4.00 (1.44) | 4.03 (1.43) | 4.58 (0.81) | 4.58 (0.88) |
| Subscale total | 3.58 (1.03) | 4.24 (0.78) | 4.23 (0.92) | 4.58 (0.77) | 4.55 (0.59) |
| Subscale α | 0.78 | 0.75 (0.59, 0.97) | 0.85 (0.75, 0.92) | 0.90 (0.83, 0.95) | 0.58 (0.29, 0.77) |
| Test–retest r, p value | 0.73, 0.001 | 0.41, 0.023 | |||
| Social/family | |||||
| What friends think | 2.23 (1.38) | 4.55 (0.77) | 4.52 (0.77) | 4.58 (0.96) | 4.55 (0.99) |
| Limiting socialization | 2.71 (1.59) | 4.94 (0.25) | 4.81 (0.48) | 4.71 (0.82) | 4.74 (0.82) |
| What family thinks | 3.29 (1.43) | 4.68 (0.75) | 4.52 (0.96) | Deleted | Deleted |
| Spousal attitude | 2.73 (1.48) | 4.57 (0.90) | 4.45 (0.96) | 4.52 (1.00) | 4.61 (0.99) |
| Family responsibility | 3.08 (1.51) | Deleted | Deleted | Deleted | Deleted |
| Going out in public | 2.70 (1.66) | 4.55 (0.85) | 4.45 (0.88) | 4.45 (0.93) | 4.32 (1.01) |
| Self-care | 4.74 (0.58) | 4.81 (0.48) | Deleted | Deleted | |
| Asking friends for care | 4.35 (1.25) | 4.35 (1.08) | Deleted | Deleted | |
| Other's questions | 4.48 (0.93) | 4.58 (0.81) | |||
| Subscale total | 2.80 (1.15) | 4.63(0.44) | 4.56 (0.51) | 4.55 (0.80) | 4.56 (0.83) |
| Subscale α | 0.87 | 0.60(0.32, 0.78) | 0.74 (0.56, 0.86) | 0.92 (0.56, 0.86) | 0.94 (0.89, 0.97) |
| Test–retest r, p value | 0.78, 0.001 | 0.97, 0.001 | |||
| Physical/functioning | Deleted all | Deleted all | |||
| Skin sensitivity | 2.69 (1.50) | 4.84 (0.37) | 4.77 (0.56) | ||
| Skin sore | 3.48 (1.32) | 4.68 (0.79) | 4.94 (0.25) | ||
| Body functions | 3.75 (1.49) | ||||
| Bathing | 4.84 (0.45) | 4.94 (0.25) | |||
| Grooming | 4.87 (0.34) | 4.81 (0.40) | |||
| Subscale total | 3.49 (1.07) | 4.81 (0.35) | 4.86(0.22) | ||
| Subscale α | 0.63 | 0.58 (0.27, 0.78) | 0.32 (0.18, 0.64) | ||
| Test–retest r, p value | 0.38, 0.037 | ||||
Note. Phase II, n = 52, 71 items; T-R I, n = 31, 36 items; T-R II, n = 31, 26 items.
*
Data are reported as mean (SD).