Table 5 Proportion of patients with serum bilirubin concentration within the normal range (⩽17 μmol/l) at diagnosis, at referral to the Royal Free Hospital, and at the last follow up, for 43 patients with primary biliary cirrhosis‐systemic sclerosis (PBC‐SSc) and 82 with PBC alone matched by serum bilirubin at referral to the Royal Free Hospital.

	Bilirubin ⩽17 μmol/l			Proportion of patients on UDCA treatment
	At diagnosis	At referral to Royal Free Hospital†	At last follow up*
PBC‐SSc	52%	66%	58%	19%
PBC	64%	63%	39%	16%

*Values at last follow up for patients alive, last values before transplantation for transplanted patients, and last value before death for patients who died.

†Serum bilirubin values at this time were used for matching the cohort of patients with PBC alone.