HIV treatment information |
"I look for health information on the Internet such as the evolution of medicines in other countries, side effects, types of medicines and the quality of them; try to keep up-to-date so then I can inform to other people." Male, 38 years |
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"I look for information on the Internet to receive some advice, to be prevented of side effects of medicines; how to detect some [HIV-related] diseases, which medicines they take to combat those diseases, types of prophylactic medicines. It's a lot of information." Male, 36 years |
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"When I wake up, I turn on my computer, it's the first thing I do. I read some magazines and journals related with HIV... I read all the headlines first. I wish I could read on the Internet 'the cure for HIV was just discovered.' I haven't read something like that yet in the headlines." Male, 36 years |
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"I like the forums because you can discuss/propose a topic. For example, I'd like to receive topics of recent updates of the disease/research about HIV. For example, to post something that happened to you and how to deal with." Male, 28 years |
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"I think I know quit a bit about the HIV, medicines, side effects, a lot of things. At the same time, I don't wanna miss anything" (smiles).... I even programmed alerts in Google, so I receive information of anything on what's going with HIV. I think it's important the technology because without it right now I could be like a blind fish, not knowing where to go, and following the advice of doctors. I think It's not enough; so for me it's important to be informed." Male, 36 years |
HIV transmission risk reduction information |
"After I was diagnosed with HIV, I looked for information on the Internet on lifestyles, on how to take care on my skin, on how to protect other people." Male, 43 years |
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Quotes of people having negative experiences |
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Overwhelming |
"I get info through the Internet, it's the most important source of information for me. You can find good and important information but also there is a lot of silly information. Internet can inform you but also can confuse you, it could increase your worries.... I discuss what I found on the Internet with my physicians and my psychologist." Male, 36 years |
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"When I changed my antiretrovirals, I wanted to know the possible adverse effects of the new medicine (efavirenz). I found on the Internet that it produces nightmares, etc. After reading that, I started having nightmares. So then, I decided NOT to go to the Internet anymore to read about the updates, new adverse events, etc., because you get psycho." Male, 43 years |
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"I don't like the Internet because is kind of complicated. For example, in the chat, you can start chatting with one person and then other and other one; and that is what I don't like." Female, 28 years |
Potential for misinformation |
"Anyone can say whatever on the Internet and this is not always true." Male, 35 years |
Waste of time/money |
"I like forums on the Internet because I can read about experiences from others that I might shared with. Unfortunately the forum that I used [name of forum] didn't work very much for me. The first days that I was diagnosed with HIV I posted several questions on the Web, and I never got response. The most I hate is wasting my time, energy and even money, in being connected, and at the end, nobody responds." Male, 36 years |