| • Variable, sometimes spontaneously and always if asked |
| • When asked and when I think it is appropriate, although it is always a subjective assessment |
| • If refuses treatment |
| • If not compliant with treatment |
| • To help patients decide they should go on treatment |
| • If there are problems with adherence to treatment that are putting the patient at increased risk |
| • If patient is considering the option of no treatment |
| • Riot act for non‐compliance |
| • Those patients with frequent attacks who decline drug therapy |
| • If the patient asks generally what the risks of epilepsy are |
| • Since I qualified in 1969, none of my patients have died of SUDEP. I see children and adolescents with special educational needs. None of them or their parents has ever asked about SUDEP |
| • I discuss that epilepsy is dangerous and death can result. I do not state that if they have it they are at risk of death immediately and at any time |
| • If another member of the family/friend has been a victim of SUDEP |
| • Difficult to say, but when it feels appropriate—that is, patient led |
