Table 2 Summary of patient characteristics and data quality indicators for incident childhood cancers, Ireland, 1994–2000, and comparison with European (EUROCARE‐3)2 and US (SEER) data8.
Ireland 1994–2000 | Europe 1990–94 | USA 1994–2000 | |||
---|---|---|---|---|---|
Cases | % | Mean (%) | National range (%) | % | |
All cases | 787 | 100.0 | |||
Boys | 425 | 54.0 | 56 | 49–70 | 54.4 |
0–4 years of age | 327 | 41.6 | 45 | 35–56 | 46.5 |
5–9 years of age | 208 | 26.4 | 26.4 | ||
10–14 years of age | 252 | 32.0 | 27.2 | ||
Microscopic verification | 740 | 94.0 | 93 | 79–100 | 95.5 |
Death certificate‐ or autopsy‐only* | 4 | 0.5 | 0.6 | 0–5.9 | 0.4 |
Unspecified cases† | 44 | 5.6 | 3.4 | 0–14.9 | 2.2 |
Lost to follow‐up‡ | NA | NA | 1.1 | 0–7.0 | |
Alive with follow‐up <4 years | 183 | 23.2 | 6.9 | 0–22.2 |
*Three death certificate‐only and one autopsy‐only cases were excluded from survival analyses.
†Unspecified cases: cases assigned to non‐specific ICCC categories Ie, IIe, IIIf, VIc, VIIc, VIIIe, IXe or XIIb (cf table 1).
‡Loss to follow‐up was not directly available for Irish cases, as follow‐up was based mainly on comprehensive death certificate linkage.