Table 4 Topics for transition guidelines in haemophilia*.
| Goals and objectives | Strategies for achieving them – subjects to discuss |
|---|---|
| Social support | Identify relevant sources of support; recommend haemophilia camps or |
| other group activities | |
| Health and lifestyle | |
| Healthy lifestyle, diet and problem solving | Physical fitness |
| Conflict resolution | |
| Adaptations for bleeding disorder | Appropriate sport/protective equipment; choices of sports |
| Consequences of joint, muscle and major bleeds | |
| Understanding of alcohol, tobacco and drugs | Consequences of impaired judgement |
| Educational/vocational/financial planning | Explore ideas for further education and college |
| Youth exposed to a variety of career choices, need to define | Career choices, interests, employment opportunities |
| aspirations and describe a realistic plan | Encourage youth to identify mentor |
| Self‐advocacy and self‐esteem | Ensure youth can describe condition, physical abilities and can name/describe |
| Youth expresses medical and physical needs to others, youth | the role of those involved in his/her health care. Discuss role of family doctor |
| understands rights and responsibilities for health care | Youth is involved in decision making. Continued discussion of information |
| Youth seeks information/services to ensure ongoing health | sources |
| Questions, concerns and fears re: changes occurring | |
| Sexual health | |
| Parents demonstrate understanding of child's bleeding disorder | Offer support to parents in starting discussions about sexual health. Discussion |
| and its relation to sexuality. | of puberty changes and possible impact on bleeding disorder (as applicable) |
| Youth seeks to answers to questions about sexual health | Sources of information |
| Independent health care behaviour | |
| Youth demonstrates by participation in treatment and decision making | Assess/reinforce youth's understanding of treatment regimen and when to |
| seek medical advice |
*An example for 13–16 year olds (third column not included but would be tick boxes for each year in the age group as in table 5). Modified from MASAC document #14728 with permission from the NHF.