Table 5 Transition guidelines*.

		Achieved by age
Goals and objectives	Strategies	9	10	11	12
Youth demonstrates understanding of his/her	Continue to discuss signs and symptoms of bleeding/pain/
healthcare needs by participating in treatments	poor response to treatment that require medical attention	□	□	□	□
and decision making	Discuss home exercise programme
	Discuss who to call for what
Youth participates in health care management by	Increase youth's involvement with record keeping/communication	□	□	□	□
keeping records and communicating with	with HTC providers
healthcare providers	Youth starts to track home therapy supplies
	Discuss developmental tasks of adolescence as they relate to
	family (disclosure, etc)
	Discuss feelings on progressing to independence
Parents/youth understand the genetic component of	Educate parents/youth re: inheritance of bleeding disorder (genetic	□	□	□	□
youth's disorder	variables, pregnancy risks, etc)
	Provide written materials re: inheritance patterns, family tree
	Educate at risk family members re: carrier testing

*An example for 9–12 year olds from the section relating to independent health care behaviours. Modified from MASAC document #147²⁸ with permission from the NHF.

HTC, haemophilia treatment centre.