Table 5 NPI items and caregiver distress scores in the total group and in those with the symptom present.
| NPI item | All patients (n = 76) | Patients with symptoms present | All caregivers (n = 76) | Caregiver distress score when symptom is present in patient | ||
|---|---|---|---|---|---|---|
| Item score (mean (SD)) | Proportion with non‐zero score (n (%)) | Item score (mean (SD)) | Item score (mean (SD)) | No (%) with at least moderate distress* | % of all | |
| Delusions | 0.24 (1.45) | 2 (2.6) | 0.17 (0.84) | 4.33 (0.58) | 3 (100) | 3.9 |
| Hallucinations | 0 | 0 | 0 | 0 | 0 | 0 |
| Agitation/aggression | 0.51 (1.27) | 15 (19.7) | 0.51 (1.2) | 2.5 (1.3) | 8 (50) | 10.5 |
| Depression | 1.43 (1.87) | 44 (57.9) | 1.3 (1.5) | 2.3 (1.3) | 23 (51.1) | 30.3 |
| Anxiety | 0.53 (1.36) | 13 (17.1) | 0.4 (1.0) | 2.4 (1.2) | 9 (64.3) | 11.8 |
| Euphoria | 0.04 (0.20) | 3 (3.9) | 0.04 (0.25) | 0.75 (0.96) | 0 | 0 |
| Apathy | 1.45 (2.79) | 22 (28.9) | 0.7 (1.3) | 2.3 (1.4) | 12 (52.2) | 15.8 |
| Disinhibition | 0.18 (0.86) | 5 (6.6) | 0.17 (0.7) | 2.6 (1.14) | 3 (60) | 3.9 |
| Irritability/lability | 1.03 (1.66) | 30 (39.5) | 0.8 (1.4) | 2.0 (1.6) | 11 (35.5) | 14.5 |
| Aberrant motor behaviour | 0.18 (0.89) | 4 (5.3) | 0.08 (0.5) | 1.5 (1.9) | 1 (25) | 1.3 |
| Sleep disturbance | 1.66 (2.25) | 31 (44.7) | 0.42 (1.0) | 0.94 (1.37) | 6 (17.1) | 7.9 |
| Appetite disturbance | 1.55 (2.67) | 24 (31.6) | 0.14 (0.68) | 0.46 (1.18) | 2 (8) | 2.6 |
| Total NPI | 8.88 (10.60) | 61 (80.3) | 4.7 (6.5) | 5.97 (6.79) | 39 (62.9) | 51.3 |
NPI, Neuropsychiatric Inventory.
*Number and percentage of caregivers who reported the symptom to be present, who reported at least a moderate distress score of 3, on the NPI caregiver distress item.