Table 2. Needs and preferences during the follow-up visits (%).

	Not important/do not want this (%)	Not very important/do not care (%)	Very important/I certainly want this (%)
General topics
How much would you like the following topics to be part of the follow-up visit?
Information on the long-term effects of treatment	2.5	13.50	84.00
Information on own prognosis	6.3	8.9	84.80
Information on life rules after a diagnosis of breast cancer (e.g. nutrition)	7.5	26.30	66.30
Information on side effects of treatment	3.7	9.9	86.40
Additional investigations (e.g. X-ray and blood tests)	6.6	11.80	81.60
Specific topics
In how far you would like to talk about the following subjects during the follow-up visits?
Prevention of breast cancer	13.20	14.50	72.40
Heredity factors	18.40	13.20	68.40
Changes in the untreated breast	20.20	14.90	64.90
Feeling fatigued	25.00	22.40	52.60
Pain (e.g. nerve pain)	26.00	27.40	46.60
Fear	38.20	21.10	40.70
Nutrition	37.80	35.10	27.10
Use of OACs or HRTsa	39.10	11.60	49.30
Breast reconstruction (if applicable)	50.00	24.20	25.80
Acceptation by family and friends	52.80	27.80	19.40
How much you would like the following topics to be part of the follow-up visit?
Information on breast cancer self-help groups	40.50	40.50	19.00
Consultation with psychologist or psychiatrist	53.80	38.50	7.7
Consultation with hospital social worker	44.30	39.20	16.50
Consultation with pastoral care provider	59.00	34.60	6.4
Organisation	Every year (%)	Every 6 months (%)	Every 3 months (%)
How often would you prefer to attend routine control visits?	16.20	58.80	25.00
	5 years (%)	10 years (%)	Lifelong (%)
For how long would you prefer to attend routine control visits?	12.10	22.00	65.90
	General practitioner (%)	Specialised nurse (%)	Hospital doctor (%)
By whom should the follow-up be performed?	7.60	6.30	86.10

^a OA=oral anticonceptiva; HRT=hormone replacement therapy.