Table 1.
Table 1 Survey Results by Question
| Item | US Response | Scottish Response | Significance | |
|---|---|---|---|---|
| 1. | I am receptive to the idea of creating a database of DNA. (n=79) | 4.35 | 3.70 | p<0.001 |
| 2. | Using “spare” or extra blood is a good way to obtain DNA. (n=80) | 4.24 | 3.90 | p=0.115 |
| 3. | I would be likely to use information from such a DNA database in my practice. (n=79) | 3.41 | 2.85 | p=0.034 |
| 4. | I would feel comfortable consenting a patient for a “spare blood” DNA sample. (n=80) | 3.65 | 2.93 | p<0.001 |
| 5. | A DNA database would be beneficial in providing information needed in the work to cure disease. (n=80) | 4.46 | 3.80 | p<0.001 |
| 6. | Some populations would be more likely to benefit from this project than others. (n=79) | 3.58 | 3.80 | p=0.921 |
| 7. | The database would not be secure. (n=79) | 2.32 | 2.85 | p=0.116 |
| 8. | Information from a DNA database might be sold even if the creators say the data is private. (n=78) | 2.75 | 2.95 | p=0.327 |
| 9. | Participants' genetic information might be used for unintended purposes, e.g., notification of their employer. (n=79) | 2.46 | 2.69 | p=0.426 |
| 10. | Participants should be alerted if a potential cure were developed for their disease. (n=80) | 4.15 | 3.75 | p=0.082 |
| 11. | It is important that patient participants receive a portion of any profits that may result from advances made using the DNA database. (n=80) | 2.37 | 2.23 | p=0.642 |
| 12. | Patients should be able to know the results of their DNA test. (n=80) | 4.51 | 3.25 | p=0.194 |
| 13. | Patients would feel coerced to donate a DNA sample. (n=80) | 2.24 | 2.70 | p=0.027 |
| 14. | Patients would be able to understand the reasons for donating a DNA sample. (n=80) | 3.49 | 3.18 | p=0.194 |
| 15. | Patients will be likely to donate a DNA sample. (n=80) | 3.46 | 3.25 | p=0.191 |
| 16. | I would be willing to spend 5 minutes consenting a patient for a “spare blood” DNA sample. (n = 40) | N/A | 2.26 | N/A ∗ |
∗ No statistical comparison between locations was completed for item #16.
Numerical values are weighted average response where 5.0 represents “Strongly Agree” and 0 represents “Strongly Disagree.” Significance indicates difference in responses between study locations.