Table 2.
Assessments and Instruments | Baseline | 6 weeks | 3 months | 6 months | 12 months | 24 months |
Baseline Variables | ||||||
Demographic variables | x | x | x | x | x | x |
Disease related variables | x | |||||
Medication | x | x | x | x | x | x |
Intoxication (smoking, alcohol) | x | |||||
Body Structure and Functions | ||||||
Pain | ||||||
VAS diary pain | x | x | x | x | x | x |
Mc Gill pain questionnaire | x | x | x | x | x | x |
Sensory symptoms | ||||||
Sensory testing [22] | x | x | x | x | x | x |
Vasomotor | ||||||
Thermometry [23] | x | x | x | x | x | x |
Sudomotor/edema | ||||||
Indirect volumetry [24] | x | x | x | x | x | x |
Motor/trophic | ||||||
Range of motion [25] | x | x | x | x | x | x |
Dystonia (Fahn Marsden Scale) [26]+ | x | x | x | x | x | x |
TREND Symptoms Inventory [27] | x | x | x | x | x | x |
Participation | ||||||
Radboud Skills Questionnaire [28]* ° | x | x | x | x | x | x |
Walking Ability Questionnaire [29]"° | x | x | x | x | x | x |
Rising & Sitting Ability Questionnaire [30]"° | x | x | x | x | x | x |
Participation | ||||||
Social Involvement Questionnaire [31] | x | x | x | x | ||
Global Outcomes | ||||||
SF-36 [32] | x | x | x | x | ||
EQ-5D [33] | x | x | x | x | ||
Environmental factors | ||||||
Living situation, education, employment | x | x | x | x | x | x |
Personal Factors | ||||||
Tampa Scale of Kinesiophobia [34] | x | x | x | x | ||
Hospital Anxiety & Depression scale [35] | x | x | x | x | ||
Co-Morbidity [36] | x | x | x | x |
+The Fahn Marsden Score will only be used in patients with clinical signs of dystonia.
*Only in patients with CRPS 1 in the upper extremity.
"Only in patients with CRPS 1 in the lower extremity.
°These questionnaires will be validated in German as a side project.