Table 2.

Outcome measures (adapted from [8])

Assessments and Instruments	Baseline	6 weeks	3 months	6 months	12 months	24 months
Baseline Variables
Demographic variables	x	x	x	x	x	x
Disease related variables	x
Medication	x	x	x	x	x	x
Intoxication (smoking, alcohol)	x
Body Structure and Functions
Pain
VAS diary pain	x	x	x	x	x	x
Mc Gill pain questionnaire	x	x	x	x	x	x
Sensory symptoms
Sensory testing [22]	x	x	x	x	x	x
Vasomotor
Thermometry [23]	x	x	x	x	x	x
Sudomotor/edema
Indirect volumetry [24]	x	x	x	x	x	x
Motor/trophic
Range of motion [25]	x	x	x	x	x	x
Dystonia (Fahn Marsden Scale) [26]+	x	x	x	x	x	x
TREND Symptoms Inventory [27]	x	x	x	x	x	x
Participation
Radboud Skills Questionnaire [28]* °	x	x	x	x	x	x
Walking Ability Questionnaire [29]"°	x	x	x	x	x	x
Rising & Sitting Ability Questionnaire [30]"°	x	x	x	x	x	x
Participation
Social Involvement Questionnaire [31]	x			x	x	x
Global Outcomes
SF-36 [32]	x			x	x	x
EQ-5D [33]	x			x	x	x
Environmental factors
Living situation, education, employment	x	x	x	x	x	x
Personal Factors
Tampa Scale of Kinesiophobia [34]	x			x	x	x
Hospital Anxiety & Depression scale [35]	x			x	x	x
Co-Morbidity [36]	x			x	x	x

⁺The Fahn Marsden Score will only be used in patients with clinical signs of dystonia.

*Only in patients with CRPS 1 in the upper extremity.

"Only in patients with CRPS 1 in the lower extremity.

°These questionnaires will be validated in German as a side project.