| Three component outcome model |
Posits three components to assess a patient's ‘true’ end point: (1) objective (e.g., survival); (2) experiential (e.g., mood); and (3) a judgement of clinical relevance, (i.e., which end point is most important) |
| Threshold value |
On a scale from 0 (very bad) to 100 (very good) a value below 50 is regarded as ‘diseased’, because this implies ‘quite a bit’ or ‘very much’ symptom appraisal on the corresponding item. |
| Quality of life profile |
Contains 10 QoL dimensions (derived from EORTC-QLQ-C30+BR23), all scores uniformly scaled from 0 to 100 and displayed in vertical. The graphic presentation allows to spot QoL impairments at a glance. |
| Health status form |
Includes basic information regarding clinical (e.g., tumour stage) and selected non-clinical variables (e.g., co-fatalities) and doctor's overall judgement of patient's QoL at the time patients report on their QoL. |
| Expert report |
Five experts from different disciplines (medicine, psychology) individually diagnosed QoL profiles and the concurrent health status forms, and merged their perspectives into one single report that is structured (1) findings, (2) interpretation, and (3) therapeutic recommendation. |
| Care pathway |
Describes the logical chain of the various elements of primary and follow-up care according to current guidelines, supplemented by QoL assessments and interventions at designated time points. |
| Quality of life enhancing treatment options |
Evidence suggests that the following treatment options have QoL enhancing properties: physiotherapy and lymphatic drainage, pain therapy, psychotherapy, nutrition counseling and physical fitness, social rehabilitation. |
