Table 8.
Scores | |||||||||||
Study | Sample characteristics | N | Age groups | Self-Report | Proxy Report | Reliability range | Type of Validity tested | ||||
Total | Physical | Psychosocial | Total | Physical | Psychosocial | ||||||
Our Study | Healthy Children | 105 | 2–18 yo | 72.72 | 75.42 | 71.20 | 82.19 | 86.20 | 79.91 | Known groups validity Convergent validity Self-report/Proxy correlations | |
Chronic conditions | 287 | 2–18 yo | 66.87 | 67.76 | 66.36 | 73.36 | 74.67 | 72.41 | |||
US Original1‡ | Well-child visits, clinic visits, children who had an admission | 1645 | 2–18 yo | 79.62 | 80.19 | 79.37 | 80.87 | 81.38 | 80.58 | 0.68–0.90 | Known groups validity Predictive validity Factor analysis |
Austria2 | School children | 1412 | 8–12 yo | 81.9 | 87.8 | 79.9 | 84.9 | 90.6 | 83.1 | NR | Construct validity Predictive validity |
Finland3 | School children | 1097 | 8–12 yo | 81.54 | 85.57 | 78.68 | 77.61 | 79.20 | 76.26 | 0.69–0.91 | Compared to US study results |
Germany4 | Chronic conditions | 41 (epilepsy) | 2–17 yo | 78.0 | 87.3 | NR | 76.7 | 84.1 | NR | 0.72–0.91 | Known groups validity Self-report/Proxy correlations |
126 (cancer) | 82.6 | 86.7 | NR | 80.4 | 85.0 | NR | 0.60–0.84 | ||||
Greece5 | School children | 645 | 8–12 yo | 82.10 | 84.27 | 80.94 | 83.11 | 87.75 | 80.67 | 0.65–0.84 | Factor analysis Self-report/Proxy correlations |
Iceland6 | School children | 480 | 10–12 yo | Not reported summarized | NR | Predictive validity Known groups validity | |||||
Norway7 | School children | 425 | 13–15 yo | 85.29 | 91.12 | 82.16 | 86.10 | 88.83 | 84.66 | 0.73–0.88 | Factor analysis Convergent correlation Self-report/Proxy correlations |
UK8 | School children | 1399 | 2–18 yo | 83.89 | 88.51 | 81.84 | 84.61 | 89.06 | 82.21 | > 0.70 | Known groups validity Self-report/Proxy correlations |
Chronic conditions | 365 | 2–18 yo | Scores were reported for each condition but not summarized | ||||||||
Turkey9 | Healthy children, children with acute and chronic conditions | 223 | 2–4 yo | NA | NA | NA | 78.17 | 79.40 | 77.25 | 0.66–0.85 | Known groups validity Self-report/Proxy correlations |
198 | 5–7 yo | 71.56 | 72.66 | 70.82 | 72.92 | 69.96 | 74.76 | 0.57–0.86 | |||
Japan10 | School children | 229 | 6–13 | 76.7 | 83.4 | 73.3 | 81.4 | 92.6 | 75.8 | 0.71–0.86 | Known groups validity Self-report/Proxy correlations Factor analysis |
Chronic conditions | 100 | 5–18 | NR | NR | NR | NR | NR | NR | NR | ||
Catalunya11 | School children | 511 | 9–17 yo | 81.53 | 88.26 | 79.23 | - | - | - | 0.76–0.80 | Known groups Convergent validity (compared with KINDL scores) Predictive validity |
‡ PedsQL 4.0 has undergone multiple validation studies in the US. A summary of the results and citations is provided in the introduction.
NR: Not reported
1. Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001;39(8):800–12.
2. Felder-Puig R, Baumgartner M, Topf R, Gadner H, Formann AK. Health-Related Quality of Life in Austrian Elementary School Children. Med Care 2008;46(4):432–439.
3. Laaksonen C, Aromaa M, Heinonen OJ, Suominen S, Salantera S. Paediatric health-related quality of life instrument for primary school children: cross-cultural validation. J Adv Nurs 2007;59(5):542–50.
4. Felder-Puig R, Frey E, Proksch K, Varni JW, Gadner H, Topf R. Validation of the German version of the Pediatric Quality of Life Inventory (PedsQL) in childhood cancer patients off treatment and children with epilepsy. Qual Life Res 2004;13(1):223–34.
5. Gkoltsiou K, Dimitrakaki C, Tzavara C, Papaevangelou V, Varni JW, Tountas Y. Measuring health-related quality of life in Greek children: psychometric properties of the Greek version of the Pediatric Quality of Life Inventory(TM) 4.0 Generic Core Scales. Qual Life Res 2008;17(2):299–305.
6. Svavarsdottir EK, Orlygsdottir B. Health-related quality of life in Icelandic school children. Scand J Caring Sci 2006;20(2):209–15.
7. Reinfjell T, Diseth TH, Veenstra M, Vikan A. Measuring health-related quality of life in young adolescents: reliability and validity in the Norwegian version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes 2006;4:61.
8. Upton P, Eiser C, Cheung I, et al. Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes 2005;3:22.
9. Uneri OS, Agaoglu B, Coskun A, Memik NC. Validity and reliability of Pediatric Quality of Life Inventory for 2- to 4-year-old and 5- to 7-year-old Turkish children. Qual Life Res 2008;17(2):307–15.
10. Chen X, Origasa H, Ichida F, Kamibeppu K, Varni JW. Reliability and validity of the Pediatric Quality of Life Inventory (PedsQL) Short Form 15 Generic Core Scales in Japan. Qual Life Res 2007;16(7):1239–49.
11. Huguet A, Miro J. Development and psychometric evaluation of a Catalan self- and interviewer-administered version of the Pediatric Quality of Life Inventory version 4.0. J Pediatr Psychol 2008;33(1):63–79.