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. 2008 Aug 19;99(6):875–882. doi: 10.1038/sj.bjc.6604611

Table A1.

Question Heading Subheading Examples of utterances coded
1. Do you think that cancer patients should be involved in decisions regarding their treatment?a
  Conditions for involvement Information Being able to understand information about alternatives; right to receive information
    Patient-clinician relationship Clinician's honesty; patient's trust in clinician; clinician's clarity of information
    Decision There is a choice to be made
  Roles in decision-making process Patient Patient autonomy; patient chooses what he/she considers as quality; patient carries responsibility; patient thinks along
    Clinician Clinician has the expertise; clinician advises; clinician is responsible
  Outcome of decision-making process   Patient and clinician reach agreement; motivated patient endures the treatment better
  Legal obligation Informed consent procedure Need to comply to the informed consent procedure
2. If so, do you think all patients are able to be involved in deciding about their treatment?b
  Psychological inabilityc  
  Emotional barriers   Patient is too anxious; patient is emotionally unstable; patient lacks confidence
  Cognitive barriers   Patient has limited intelligence; patient has difficulties with appraising risks; patient does not understand the information
  Socio-demographic factors   Patient stems from an older generation; patient lacks social support; patient holds particular religious beliefs
  Co-morbidity   Dementia; intellectual disability; psychiatric disorder
  Complex situation   Patient is unfamiliar with decision situation; information is complex
3. If a patient does not want to be involved in deciding about treatment, do you think that physicians should nevertheless try to involve their patient in deciding about treatment? d
  Reason why Patient: Temporary evasive behaviour Patient feels panicky; it is important to help prevent regret in patient
    Patient: Responsibility Patient is (also) responsible; patient has to live with the consequences; patient is autonomous
    Clinician It is clinician's task; clinician needs patient agreement
    Patient-clinician relationship Creates mutual trust
  Clinician's devotion to involve patient To the utmost Clinician should try to involve patient to the utmost
    Within reason Clinician should try to involve patient within reason
    Respect patient's wish Clinician should respect patient's wish not to participate
  Manner in which   Clinician gives information; clinician reassures the patient; clinician takes time; clinician involves significant others of patient; clinician gains patient's trust
4. In deciding about treatment, one looks at advantages and disadvantages of various options, among other things. Do you think that physicians are always able to determine how these advantages and disadvantages weigh for a patient? e
5. If the decision is about quality vs length of life, do you think that physicians can always decide for patients how these should be weighed?
  Yes, the starting point is the… Patient Patient trusts the clinician; patient does not understand the situation well enough
    Clinician Clinician has the expertise; clinician is responsible; clinician has the ability to estimate patient values
    Patient-clinician relationship Good communication; clinician knows the patient well enough
  No, the starting point is the … Patient Individual patients differ too much from one another; patient makes own decision; patient knows best; patientś experience with health or health care differ; patients differ in their acceptance of treatments
    Clinician Clinician has own subjective stance; clinician cannot infer importance for patient; clinician brings in own emotions
    Patient-clinician relationship Clinician does not know patient well enough; clinician and patient need to consult together; patient needs to share own values with clinician
a

The participants' explanations to this question were only coded in those agreeing to patient involvement.

b

The participants' explanations to this question were only coded in those agreeing to patient involvement (question 1) and disagreeing to question 2.

c

This category includes references to psychological inabilities in patients that participants did not further specify.

d

The participants' explanations to this question were coded both in those answering ‘yes’ and ‘no’ to the question.

e

Coding categories for questions 4 and 5 were identical.