Table A1.
Question | Heading | Subheading | Examples of utterances coded |
---|---|---|---|
1. Do you think that cancer patients should be involved in decisions regarding their treatment?a | |||
Conditions for involvement | Information | Being able to understand information about alternatives; right to receive information | |
Patient-clinician relationship | Clinician's honesty; patient's trust in clinician; clinician's clarity of information | ||
Decision | There is a choice to be made | ||
Roles in decision-making process | Patient | Patient autonomy; patient chooses what he/she considers as quality; patient carries responsibility; patient thinks along | |
Clinician | Clinician has the expertise; clinician advises; clinician is responsible | ||
Outcome of decision-making process | Patient and clinician reach agreement; motivated patient endures the treatment better | ||
Legal obligation | Informed consent procedure | Need to comply to the informed consent procedure | |
2. If so, do you think all patients are able to be involved in deciding about their treatment?b | |||
Psychological inabilityc | — | ||
Emotional barriers | Patient is too anxious; patient is emotionally unstable; patient lacks confidence | ||
Cognitive barriers | Patient has limited intelligence; patient has difficulties with appraising risks; patient does not understand the information | ||
Socio-demographic factors | Patient stems from an older generation; patient lacks social support; patient holds particular religious beliefs | ||
Co-morbidity | Dementia; intellectual disability; psychiatric disorder | ||
Complex situation | Patient is unfamiliar with decision situation; information is complex | ||
3. If a patient does not want to be involved in deciding about treatment, do you think that physicians should nevertheless try to involve their patient in deciding about treatment? d | |||
Reason why | Patient: Temporary evasive behaviour | Patient feels panicky; it is important to help prevent regret in patient | |
Patient: Responsibility | Patient is (also) responsible; patient has to live with the consequences; patient is autonomous | ||
Clinician | It is clinician's task; clinician needs patient agreement | ||
Patient-clinician relationship | Creates mutual trust | ||
Clinician's devotion to involve patient | To the utmost | Clinician should try to involve patient to the utmost | |
Within reason | Clinician should try to involve patient within reason | ||
Respect patient's wish | Clinician should respect patient's wish not to participate | ||
Manner in which | Clinician gives information; clinician reassures the patient; clinician takes time; clinician involves significant others of patient; clinician gains patient's trust | ||
4. In deciding about treatment, one looks at advantages and disadvantages of various options, among other things. Do you think that physicians are always able to determine how these advantages and disadvantages weigh for a patient? e | |||
5. If the decision is about quality vs length of life, do you think that physicians can always decide for patients how these should be weighed? | |||
Yes, the starting point is the… | Patient | Patient trusts the clinician; patient does not understand the situation well enough | |
Clinician | Clinician has the expertise; clinician is responsible; clinician has the ability to estimate patient values | ||
Patient-clinician relationship | Good communication; clinician knows the patient well enough | ||
No, the starting point is the … | Patient | Individual patients differ too much from one another; patient makes own decision; patient knows best; patientś experience with health or health care differ; patients differ in their acceptance of treatments | |
Clinician | Clinician has own subjective stance; clinician cannot infer importance for patient; clinician brings in own emotions | ||
Patient-clinician relationship | Clinician does not know patient well enough; clinician and patient need to consult together; patient needs to share own values with clinician |
The participants' explanations to this question were only coded in those agreeing to patient involvement.
The participants' explanations to this question were only coded in those agreeing to patient involvement (question 1) and disagreeing to question 2.
This category includes references to psychological inabilities in patients that participants did not further specify.
The participants' explanations to this question were coded both in those answering ‘yes’ and ‘no’ to the question.
Coding categories for questions 4 and 5 were identical.