1. Healthcare centre |
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2. Age |
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3. Patient and caregiver gender |
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4. Family relationship between patient and caregiver |
1. Spouse/2. Son-Daughter/3. Brother-sister/4. Others |
5. Home care delivery sub-programme which the subject belongs to |
1. Immobilised patients/2. Patients recently discharged form hospital requiring home care/3. Terminally ill patients/4. Caregiver for any of these patients |
6. Number of daily hours devoted to care by caregiver |
< 1 hour/1–2 hours/3–5 hours/6–8 hours/10–20 hours/>20 hours (Thresholds from the Aged People Characteristics Study) |
7. Patient and caregiver's health problems |
Classification of health problems from the National Health Survey |
8. Programme start and end dates |
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VARIABLES RELATED TO CLINICAL OUTCOMES AND QUALITY OF LIFE (DEPENDENTS): |
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1. Patient's functional capacity |
Barthel and Lawton-Brody scales |
2. Caregiver burden |
Zarit test |
3. Family role/function |
APGAR family test |
4. Cognitive function |
Pfeiffer test |
5. Quality of life |
EUROQOL 5D |
6. Satisfaction |
SATISFAD, specific questionnaire validated for assessment of satisfaction with home care services [38] |
7. Institutionalisation |
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8. Mortality |
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9. Management of therapeutic regimen |
Nursing Outcomes Classification code 1813 [39] |
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VARIABLES RELATED TO USE AND DELIVERY OF SERVICES (DEPENDENTS) |
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1. Hospital admissions |
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2. A&E visits |
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3. home visits by nurse |
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4. social worker interventions |
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5. physiotherapy sessions |
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6. caregiver visits to healthcare centre |
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7. patient visits to healthcare centre |
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