Table 4.
Patient and system barriers to preemptive transplantation
Most of the Time
|
Half of the Time
|
Once in a While
|
Never
|
|||||
---|---|---|---|---|---|---|---|---|
n | % | n | % | n | % | n | % | |
Patients’ reasons for delaying the procedurea | ||||||||
Worry about the consequences of a kidney removal on their donor health | 84 | 18 | 165 | 36 | 160 | 35 | 47 | 10 |
Not sure how the costs of the transplant procedure will be covered | 77 | 17 | 143 | 31 | 172 | 38 | 64 | 14 |
Not comfortable talking with family/friends about donating a kidney | 73 | 16 | 182 | 40 | 150 | 33 | 53 | 12 |
Still feel healthy | 69 | 15 | 117 | 25 | 195 | 42 | 78 | 17 |
Need time to adjust to the idea that their best treatment option is preemptive transplantation | 64 | 14 | 184 | 40 | 138 | 30 | 71 | 16 |
Concerned about the financial costs of the procedure for their donor | 55 | 12 | 115 | 25 | 184 | 40 | 103 | 23 |
Worry they might not be able to pay for their immunosuppressant drugs after the kidney transplant | 54 | 12 | 114 | 25 | 184 | 40 | 103 | 23 |
Do not want their family/friends to know about the severity of their condition | 13 | 3 | 48 | 11 | 175 | 38 | 219 | 48 |
CKD patients’ access to information about preemptive transplantationa | ||||||||
If available, I would give my patients a CD or a videotape describing pros and cons of preemptive transplantation | 324 | 74 | 92 | 21 | 13 | 3 | 7 | 2 |
When presenting different alternatives to my patients, it is easier to recommend preemptive transplantation than dialysis therapy | 158 | 36 | 143 | 33 | 115 | 26 | 22 | 5 |
It is difficult to get my patients to attend educational programs/classes to learn about their treatment options | 94 | 22 | 192 | 44 | 123 | 28 | 27 | 6 |
Lack of time prevents me from discussing in detail preemptive transplantation with my patients | 28 | 6 | 90 | 20 | 148 | 34 | 174 | 40 |
Referrals issuesa | ||||||||
CKD patients are referred in such an advanced state that there is not enough time to plan for preemptive transplantation | 85 | 20 | 213 | 49 | 138 | 32 | 5 | 1 |
There is too much delay between the time I refer a patient for preemptive transplantation and the time this patient is seen at the transplant center | 81 | 18 | 145 | 33 | 145 | 33 | 65 | 15 |
When I recommend preemptive transplantation to my patients they immediately contact a transplant center to pursue this option | 73 | 17 | 168 | 39 | 154 | 35 | 39 | 9 |
Total n per item not equal to 460 because of missing data.