Table 2.

Types of decisions reported by patients before death and families near death (N = 16)

Decision type	Patients % (n)	Family % (n)	Examples of topics within decisions
Where or from whom to seek care	37% (6)	0	Choosing a neurologist and an ALS center, whether to go to assisted living facility
Treatment of symptoms/illness	19% (3)	13% (2)	Whether to undergo endoscopy/other screenings
Life-sustaining treatments	19% (3)	31% (5)	Whether to begin ventilator support
Feeding/eating	19% (3)	13% (2)	Whether to have a PEG/feeding tube, whether to change eating habits
No decision made	6% (1)	6% (1)
Palliative care/hospice	0	25% (4)	Whether to begin home hospice
Funeral planning	0	13% (2)	Wanted to plan funeral