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. Author manuscript; available in PMC: 2008 Dec 11.
Published in final edited form as: Am J Med Genet A. 2005 Dec 1;139A(2):57–66. doi: 10.1002/ajmg.a.30911

TABLE II.

Concerns About Infertility

Infertility
Childhood (Ages 7–13) n=7+8 parents
  • Half of the parents relayed their daughters’ current difficulties in accepting infertility.

    “I’ve told her that she can’t have kids, but she won’t accept that. ‘When I grow up I’m going to have a boy and a girl.’” (Parent)

  • A number of adolescents, adults, and mature adults diagnosed between the age of 7 and 13 mentioned that they were devastated upon learning of their infertility.

Adolescence (Ages 14–19) n=18+10 parents
  • The majority of adolescents who cited infertility as a concern mentioned being extremely upset and disappointed at the time of diagnosis, while a handful perceived childbearing as a future concern and/or anticipated increased grief as they aged.

    “I think the hardest thing to deal with, as always being a person who loves kids, was the infertility issuesAt the time I was 12, yeah, I was told that I wouldn’t be able to have kids. But I don’t think it hit me then. I think it came on me more gradually as I realized, oh my God, I’m getting older, I have a serious boyfriend since I was diagnosed.” (Age 19)

  • 11/18 teenagers in the study viewed adoption and in vitro fertilization (IVF) as positive alternatives to deal with infertility.

    [I]t kind of still bugs me that I can’t have kids, but I figured out that I can adopt and so that doesn’t bug me anymore that much.” (Age 19)

Adulthood (Ages 20–39) n=39
  • Infertility posed the biggest challenge for this age group, especially once family and friends started having babies.

    [E]very once in a while, you know, when you’re holding a kid and they’re snuggling up to your neck, I really thought, you know, I wish I could have kids. I wish I had the choice.” (Age 31)

  • A couple of adults made the distinction between infertility as solely a personal difficulty versus an obstacle that must be overcome by their partners.

    “[A]ll of a sudden, this person I wanted to spend my life with was going to have to go without seeing a baby that was like him. And that was just devastating. I mean it was very, very, very, devastating.” (Age 24)

  • 27/39 adults viewed adoption and IVF as viable alternatives, yet their inability to have a biological child remained a source of sadness.

Mature Adulthood (Ages 40–59) n=29
  • The majority of women in this age group remained deeply affected by their infertility, feeling they missed out on an important part of being a woman.

    “[Women]get flowers and they get honored because they’re a mother, but I don’t --you know, I feel, does that make them a complete woman because they were able to have children? And I couldn’t, so I must be incomplete.” (Age 40)

  • A minority of mature adults claimed infertility was not a concern since they were either not married, did not want the responsibility of children, or did not feel childbearing was ever a guarantee.