Skip to main content
. Author manuscript; available in PMC: 2008 Dec 11.
Published in final edited form as: Am J Med Genet A. 2005 Dec 1;139A(2):57–66. doi: 10.1002/ajmg.a.30911

TABLE IV.

Concerns About Sexual Development And Function

Sexual Development and Function
Childhood (Ages 7–13) n=7+8 parents
  • A small number of parents anticipated sexual development as a future concern.

  • One 4th grader had already begun to think about and discuss figure development, as many of her classmates had already undergone puberty.

Adolescence (Ages 14–19) n=18+10 parents
  • Sexual development was a concern during adolescence.

  • Some girls felt different/“not normal” because they had not gone through puberty.

    “Sometimesyou feel like you’re a little girlbecause I’m short and, you know, the development, I mean, you feel like you’re not normal to some degree.” (Age 18).

  • A minority of adults and mature adults reflecting on their past expressed feeling less feminine due to their lack of sexual maturity.

Adulthood (Ages 20–39) n=39
  • Sexual development did not seem to concern adult participants beyond their adolescent experiences.

  • Women concerned about dating worried that their height or their infertility would cause men to reject them, not their underdeveloped figure.

Mature Adulthood (Ages 40–59) n=29
  • The few comments regarding sexuality beyond adolescent memories addressed both psychological and physical difficulties with sex.

    he doesn’t understand where I come from as far as, you know, why I don’t think sex is important to me, or I don’t put that priority on my list, saying that I have to do it all the time. To me, it’s not a sign of love. That’s because--well, maybe if I was able to have children, I’d probably feel totally different, because there’d be a reason for having it, because I love that man and I want his children.” (Age 40)