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. Author manuscript; available in PMC: 2008 Dec 11.
Published in final edited form as: Am J Med Genet A. 2005 Dec 1;139A(2):57–66. doi: 10.1002/ajmg.a.30911

TABLE V.

Concerns Regarding Health and Aging with Turner Syndrome

Health
Childhood (Ages 7–13) n=7+8 parents

  • Children did not mention health as a concern.
Adolescence (Ages 14–19) n=18+10 parents

  • A small number of adolescents were concerned about their health.
Adulthood (Ages 20–39) n=39

  • In this age group health concerns were more prevalent. Osteoporosis, hearing loss, and uncertainty about future health were mentioned specifically.
Mature Adulthood (Ages 40–59) n=29

  • Given the number of health issues that can affect women with Turner syndrome throughout their lives, mature adults expressed a growing concern surrounding the uncertainty of their future lifespan and the lack of available information on aging with Turner syndrome.

    “We’re the only female population that, for a long time, it was recommended that you start [hormone replacement therapy] at 12 and end it at, gee, gal, we don’t know, you can do it until you go six feet under if you want.” (Age 48)