Childhood (Ages 7–13) n=7+8 parents |
|
Adolescence (Ages 14–19) n=18+10 parents |
|
Adulthood (Ages 20–39) n=39 |
|
Mature Adulthood (Ages 40–59) n=29 |
-
Given the number of health issues that can affect women with Turner syndrome throughout their lives, mature adults expressed a growing concern surrounding the uncertainty of their future lifespan and the lack of available information on aging with Turner syndrome.
“We’re the only female population that, for a long time, it was recommended that you start [hormone replacement therapy] at 12 and end it at, gee, gal, we don’t know, you can do it until you go six feet under if you want.” (Age 48)
|