Table II.
Motives to share or not to share the reasons for the decision about ART with the physician in participants taking versus not taking ART and 2×2 chi-square analysis of presence/absence of each motive × sharing/not sharing why not taking ART with physician.
Motive category | Illustrative quotations | Frequency in patients taking ART (n = 58) versus not taking ART (n = 21)(%) | X2 Df=1 (n = 21) |
---|---|---|---|
Motives to share reasons for the decision about ART | |||
Wants to inform physician | ‘I always inform them but I am the one who makes the decision.’ | 77.6 versus 38.1** | 14.22*** |
Wants/trusts physicians opinion | ‘I believe in her decisions. She is very good and she is a specialist.’ | 72.4 versus 38.1** | 8.24** |
Presence of concerns | ‘I was scared to take it (because of hepatitis C). I even have shown him a pamphlet that was saying that it will re-infect the liver.’ | 63.8 versus 23.8** | 7.22** |
To maintain a good relationship with physician | ‘My physician and I have had a special relationship for eleven years now, so he basically is like one of my closest friends.’ | 41.4 versus 28.6 | 4.30 |
Physician asks | ‘If she brings it up and talks about it, we talk about it.’ | 25.9 versus 23.8 | 2.76 |
Indications in surrogate markers | ‘I knew he was going to see it (not taking ART) in my labs.’ | 5.2 versus 9.5 | 0.01 |
Motives not to share reasons for the decision about ART | |||
Anticipation that physician will not support decision | (Patient who stopped ART) ‘I told him that stopping ART is just something that dwells inside me. He didn’t think it will agree with me in the long run.’ | 3.4 versus 42.9*** | 14.32*** |
Unable to discuss feelings | ‘When it comes to concerns, I can communicate better with my case managers, who many are either gay or HIV, so they have a deeper understanding of what it means.’ | 8.6 versus 23.8 | 9.55* |
Lack of trust in physician’s opinion | ‘I don’t really know if I can really trust a medication or a physician’s opinion.’ | 1.7 versus 33.3*** | 5.97** |
Unable to discuss spiritual/moral issues | ‘As far as what my moral beliefs, no…I don’t think it is pertinent for him.’ | 1.7 versus 23.8** | 5.97* |
No need for physician to know | ‘I don’t think she (physician) needs to know about that (reasons for decision to restart).’ | 5.2 versus 9.5 | 2.01 |
Physician did not ask | ‘He didn’t ask.’ | 6.9 versus 0 | N/A |
Has not seen physician yet | ‘I have not seen him.’ | 5.2 versus 4.8 | 0.96 |
pf<0.05
pf<0.01
pf<0.001.