Table 3.

Motivation for patient to choose not to pursue genetic counselling

Reasons for discontinuing genetic counselling	Frequency	Percentage
1) The aim of the genetic testing is not clear	10	17,9
2) I do not feel able to face the stress of hospital visits	24	42,9
3) I am afraid of the consequences of any negative information, for me or my family	27	48,2
4) I do not feel it is fair to involve my family	18	32,1
5) I feel guilty towards my family	5	8,9
6) My family is against genetic testing	4	7,1
7) My partner is against genetic testing	3	5,4
8) I do not want to know if I have a genetic mutation which predisposes me to cancer	15	26,8
9) The test is a waste of time as it will not improve the quality of my life	14	25,0
10) The test is a waste of time as I already have cancer	6	10,7
11) The hospital is too far away	21	37,5
12) I do not have time to do all the visits needed for the genetic testing program	19	33,9
13) Having the test will not prevent me from getting cancer	23	41,1
14) I was not able to get an appointment with the doctor because the administration was unavailable	9	16,1
15) I was not able to get an appointment with the doctor because the phone-line was always engaged	13	23,2
16) The doctor was unavailable	2	3,6
17) I did not feel the medical staff was sufficently welcoming	7	12,5
18) I do not feel I can face the stress of having blood tests	2	3,6
19) I would not be able to tell my family any bad news	18	32,1
20) It would be to hard to know that I would probabely develop cancer	24	42,9
21) If I were to be a carrier of a mutation I could not stand the idea of undergoing frequent check-ups	10	17,9
22) I think early diagnosis is a waste of time	4	7,1