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. Author manuscript; available in PMC: 2009 Dec 1.
Published in final edited form as: Am J Obstet Gynecol. 2008 Dec;199(6 Suppl 2):S340–S344. doi: 10.1016/j.ajog.2008.09.870

Table 3.

Further Resources

Resources Comments
American College of Medical Genetics (www.acgme.net) Includes links to the latest standards and guidelines for clinical genetics laboratories, with disease/phenotype-specific standards and guidelines
CDC National Office of Public Health Genomics (cdc.gov/genomics) Resources on how human genomic discoveries can be used to improve health and prevent disease
Gene Tests (genetests.org) Reviews about specific conditions, laboratory and clinical directories, handouts for patients
Genetic Alliance (geneticalliance.org) Information about specific disorders, advocacy, support and discussion groups
Genetic and Rare Diseases Information Center(rarediseases.info.nih.gov/html/resourc es/info_cntr.html) Information about specific disorders, explanations for patients, financial assistance information, access to specialists.
National Society of Genetic Counselors (nsgc.org) Directory of genetic counselors, guidelines for counseling specific conditions
Online Mendelian Inheritance in Man (ncbi.nlm.nih.gov/sites/entrez?db=omim) Searchable database of genes and genetic disorders targeting health care professionals
PubMed (ncbi.nlm.nih.gov/PubMed) Medical literature database
U.S. Surgeon General’s Family History Initiative (hhs.gov/familyhistory) Education about family health history through tools such as My Family Health Portrait
HHS Vulnerability Disclosure