Table 4.
Specialists involved in the care of patients with von Hippel–Lindau disease (% of patients seen at least once by each specialist, and % of time each specialist was arranging screening test)
| Specialty | Seen at least once | Eye exam arranged by | CNS imaging arranged by | Abdominal imaging arranged by | Urine screen arranged by |
|---|---|---|---|---|---|
| Ophthamology | 84.2 | 10.5 | 6.3 | 12.5 | 0.0 |
| Neurology | 15.8 | 0.0 | 0.0 | 0.0 | 0.0 |
| Neurosurgery | 73.7 | 15.8 | 81.3 | 25.0 | 5.3 |
| Urology | 42.1 | 0.0 | 0.0 | 12.5 | 0.0 |
| Medical genetics | 89.5 | 31.6 | 0.0 | 25.0 | 10.5 |
| Internal medicine/pediatrics | 63.2 | 15.8 | 12.5 | 18.8 | 31.6 |
CNS = central nervous system.