Time 1: Communication at the time of diagnosis problem score |
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How much information did you receive about your prognosis? |
13.8 |
Was your prognosis explained to you in a way that you could understand? |
5.4 |
Was your prognosis presented to you in a sensitive manner? |
6.4 |
How much emotional support did you receive from your oncologist or cancer care providers when your prognosis was discussed with you? |
10.3 |
Were you allowed to ask as many questions as you wanted about the prognosis of your cancer? |
5.9 |
How often have you been given confusing or contradictory information about your prognosis from your oncologist or other cancer care providers? |
14.4 |
How often does your oncologist or cancer care provider explain your test results in a way that you can understand? |
14.6 |
How often do you want more information about your test results than you receive from your cancer care providers? |
35.4 |
When you see other physicians involved in your cancer care (eg, primary care physician, surgeon, radiation oncologist), how often are they aware of your test results? |
28.3 |
How often have you been given confusing or contradictory information about your test results from your cancer care providers and/or other physicians involved in your care (eg, primary care, surgeon, radiation oncologist)? |
14.6 |
How comfortable do you feel asking questions about your cancer treatment plan? |
10.5 |
Do you feel that your oncologist or cancer care providers listen to your concerns about your treatment plan? |
2.0 |
How often do your cancer care providers allow your family/friends to ask as many questions as they want about your treatment plan? |
3.0 |
How much emotional support do your cancer care providers give to your family/friends? |
7.6 |
How often would you say that your oncologist and cancer care providers work together as a team? |
16.3 |
How often do you feel that your oncologist or cancer care providers are not paying enough attention to your care? |
13.2 |
How often do you feel that you and your family are left on your own to make sure that the right things get done for your cancer care? |
14.7 |
Have you received clear instructions from your cancer care providers on whom you should call after regular office hours and/or over the weekend? |
12.8 |
How often were you able to reach your oncologist or his/her coverage in a timely manner? |
15.6 |
How often have you had to wait too long to see one of your cancer care providers when you have had an urgent medical problem? |
7.8 |
Time 2: Communication at the time of treatment decision making problem score |
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How much information do your cancer care providers give you about what you can do to manage side effects from your chemotherapy treatments? |
6.9 |
How confident are you that you know what to do to manage and/or prevent the side effects from your chemotherapy treatments? |
37.1 |
How much information do your cancer care providers give you about what you should monitor after your chemotherapy treatments? |
8.3 |
How much information have you received from your cancer care providers about chemotherapy and/or radiation treatments? |
3.8 |
How much information have you received from your cancer providers about the possible risks of chemotherapy and/or radiation treatments? |
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How much information have you received from your cancer providers about the benefits of chemotherapy and/or radiation treatments? |
3.8 |
How often do you feel that your cancer care providers listen to your concerns about the possible side effects of chemotherapy and/or radiation treatments? |
16.6 |
How much information have you received from your cancer care providers about possible changes in your physical appearance as a result of chemotherapy treatments? |
6.3 |
Have you received clear instructions from your cancer care providers on whom you should call after regular office hours and/or over the weekend? |
11.3 |
How often were you able to reach your oncologist or his/her coverage in a timely manner? |
13.7 |
How often have you had to wait too long to see one of your cancer care providers when you had an urgent medical problem? |
11.9 |
How often do your oncologist or cancer care providers work together as a team? |
19.0 |
How often would you say that your oncologist and other physicians involved in your cancer care (eg, primary care physician, surgeon, radiation oncologist) work together as a team? |
22.5 |
How often do you feel that your cancer care providers are not paying enough attention to your care? |
11.4 |
How often do you feel that you and your family are left on your own to make sure that the right things get done for your cancer care? |
14.6 |
How often do your cancer care providers explain what they are going to do in a way that you can understand? |
17.4 |
Time 2: Cancer patient experience of treatments problem score |
|
How often do your cancer care providers do everything they can to promote your comfort during treatment? |
10.7 |
How often are your cancer care providers available to speak with you when you have a concern about your chemotherapy? |
10.1 |
How often do the chemotherapy treatment rooms have adequate space so that your family can be with you? |
14.7 |
Overall, do the chemotherapy treatment rooms provide you with enough privacy? |
6.4 |
How often is everything done to make you as comfortable as possible while you are receiving your chemotherapy treatment? |
9.0 |
How much support do you get from the staff during chemotherapy treatments? |
1.9 |
How often do the staff promote your dignity during chemotherapy treatments? |
5.8 |
Does the physical environment of the treatment room allow you to focus on healing and recovering from your cancer? |
3.3 |
Overall, how often have you been treated with respect by your cancer care providers? |
5.7 |