1. Children under age 18 should be given the opportunity to be tested for the BRCA1 and BRCA2 gene alterations |
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2. Parents should decide if their children are allowed to have a BRCA test or not, even if a doctor disagrees |
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3. Even though the cancers associated with BRCA alterations do not affect children until they reach adulthood, children should still be offered BRCA testing |
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4. Children should be involved in making the decision about whether or not they participate in BRCA testing |
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5. I am in favor of BRCA1/2 gene testing for children |
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6. If children are tested and they turn out to carry a BRCA alteration (that is, they test positive), they should be told about their test result immediately |
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7. Even if there is no known prevention, treatment, or cure for the cancers associated with BRCA alterations, children should still be offered BRCA testing |
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8. If children are tested and they turn out to carry a BRCA alteration (that is, they test positive), then this information should be shared with the child's pediatrician |
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9. I want my child to be tested for BRCA1 and BRCA2 gene alterations before age 18 |
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10. If children are tested and they turn out not to carry a BRCA alteration (that is, they test negative), they should be told about their test result immediately |
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11. The benefits of children participating in BRCA testing outweigh the risks |
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Scoring: |
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Factor 1 (Attitudes and Beliefs) Sum all ODD-numbered item responses: |
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Factor 2 (Decision Making and Communication) Sum all EVEN-numbered item responses: |
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Total: |
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