Table 1.
Statements | Adaptation profiles | ||||
---|---|---|---|---|---|
A | B | C | D | ||
1 | Due to my lung disease, I cannot do as much as other people of my age | 3 | 4 | 0 | 4 |
2 | I find it difficult to accept that I am not completely healthy | −1 | 4 | 2 | 0 |
3 | I am ashamed of my lung disease | −4 | −3 | −2 | −3 |
4 | I feel equal to others, I just have a lung disease | 4 | 3 | 1 | 0 |
5 | I prefer to pretend I don’t have a lung disease | 3 | 0 | 2 | −2 |
6 | I am worried about my health | 0 | 2 | −1 | 3 |
7 | I live a healthy life | −1 | 1 | 3 | −1 |
8 | I feel healthy | −1 | 1 | 0 | −4 |
9 | I am not preoccupied with my health very much | 0 | 0 | −3 | −4 |
10 | I want to know everything about the consequences and the treatment of my lung disease | 1 | 1 | 1 | 0 |
11 | I stick to the advice of physicians and other professional helpers | 1 | 2 | 1 | 1 |
12 | I adjust my own medication when necessary | 1 | −1 | 3 | 0 |
13 | It is more important to live a pleasant life now than to be compliant with treatment | 1 | 0 | 0 | −1 |
14 | I always take my medication on time | 4 | 2 | 1 | 2 |
15 | When you have a lung disease, it is important to learn to say ‘no’ straight away | 1 | 3 | 2 | 3 |
16 | I slow down at work to save energy for my activities at home | −1 | −1 | −3 | −1 |
17 | I primarily need my holidays to recover | −4 | 0 | 1 | 0 |
18 | I’d rather not start an activity when I expect it to cause dyspnoea or fatigue | 1 | −1 | −1 | 0 |
19 | During weekends I am often exhausted | −3 | 0 | 0 | 1 |
20 | People often approach me differently when they know about my lung disease | 0 | −2 | −1 | −1 |
21 | When tobacco smoke bothers me, I say so | 0 | 3 | 1 | 0 |
22 | My employer knows about my lung disorder | 2 | 1 | 0 | 3 |
23 | I find it easy to ask for help from others when I have dyspnoea or fatigue | −1 | 1 | −4 | 0 |
24 | I try to take my medication without anyone seeing me | 2 | −4 | −1 | −2 |
25 | My colleagues do not know that I have a lung disorder | −1 | −3 | −1 | −1 |
26 | My colleagues understand that I cannot do as much as them because of my lung disorder | 0 | −2 | −1 | 1 |
27 | My employer understands that I cannot do everything because of my lung disorder | 0 | 0 | −2 | 2 |
28 | It is difficult to explain to others what it means to develop dyspnoea or fatigue as quickly as I do | 3 | −1 | 0 | −1 |
29 | I would sincerely regret it if I could not work anymore | 1 | 2 | 4 | 2 |
30 | It would be a solution when I did not have to work anymore | −2 | −4 | −4 | −1 |
31 | My employer does not take my lung disorder into account | −3 | −1 | 0 | −3 |
32 | My work is well adapted to my lung disorder | −1 | 0 | −2 | −2 |
33 | I try to arrange my work to minimize limitations resulting from my lung disorder | 0 | 1 | 1 | 1 |
34 | I have to slow down at work because of my lung disorder | −2 | 0 | −1 | 2 |
35 | My lung disorder makes me uncertain | −2 | −1 | −2 | 1 |
36 | I am ashamed that I do not function well because of my lung disorder | 0 | −3 | 0 | −3 |
37 | It is difficult that I don’t know now how I will feel tomorrow | 2 | 0 | 0 | 4 |
38 | I feel sad about the things I can no longer do | 0 | −1 | −3 | 0 |
39 | I prefer to take a day off than to take sick leave | 0 | −2 | 2 | 0 |
40 | I find it difficult to take sick leave | −3 | −2 | 4 | 1 |
41 | When I take sick leave, I increase the workload of others | −2 | 0 | 3 | −2 |
42 | It is better to take sick leave than to outrun yourself | 2 | 1 | 0 | 1 |
A “+4” score indicates that a typical worker with asthma or COPD in that profile would agree most with that statement, a “−4” score that (s)he would agree least (see also Fig. 1). Statements with a score of +4, +3, −3, or −4 score for a factor (or adaptation profile) are considered to characterize that factor. Values belonging to statements with a statistically different factor rank-order when compared with all other factors (P < .05; in bold type) are considered to distinguish that factor. Values belonging to statements that do not have a statistically significant rank-order for any factor are called consensus items, and are presented in italics