Table 1.
Number of patients and prescriptions in each centre
| Derby | Uppsala | Marburg | Bergamo | Rotterdam | Total | |
|---|---|---|---|---|---|---|
| No of patients | 192 | 87 | 85 | 118 | 142 | 624 |
| Age range | 21 days- 16 years |
4 days- 15 years |
28 days- 16 years |
30 days- 12 years |
4 days-16 years | 4 days-16 years |
| Prescriptions | 798 | 185 | 224 | 398 | 657 | 2262 |
| Mean No of prescriptions/patient | 4.2 | 2.1 | 2.6 | 3.4 | 4.6 | 3.6 |
| No (%) of prescriptions unlicensed or off label | 239 (30) | 57 (31) | 91 (41) | 264 (66) | 385 (59) | 1036 (46) |
| No (%) of prescriptions unlicensed | 58 (7) | 8 (4) | 8 (4) | 1 (0.3) | 89 (14) | 164 (7) |
| No (%) of prescriptions off label | 181 (23) | 49 (26) | 83 (37) | 263 (66) | 296 (45) | 872 (39) |
| No (%) of patients receiving unlicensed or off label treatment | 109 (57) | 37 (43) | 46 (54) | 101 (86) | 128 (90) | 421 (67) |