Table 3.
Communication Problems Reported at Baseline
| Pilot 1 (N = 41) | Pilot 2 (N = 20) | Pilot 3 (N = 21) | ||||
|---|---|---|---|---|---|---|
| Communication | n | % | n | % | n | % |
| Attitude | ||||||
| After all this time, you shouldn’t be so concerned, worried, or anxious about your health problems. |
5 | 13 | 2 | 10 | 2 | 9 |
| You are better off than a lot of people who have your health problems. | 4 | 10 | 4 | 20 | 2 | 9 |
| You should be thankful you have lived as long as you have. | 2 | 5 | 2 | 10 | 1 | 5 |
| A lot of people with your health problems are worse off than you. | 3 | 8 | 4 | 20 | 2 | 9 |
| Compared to other people with your health problems, your concerns are minor. |
3 | 8 | 4 | 20 | 2 | 9 |
| It is not necessary for you to know the details about your condition. | 5 | 13 | 1 | 5 | 1 | 5 |
| You are worrying too much. | 4 | 10 | 1 | 5 | – | – |
| Difficulty | ||||||
| Not knowing which doctor to talk to | 8 | 21 | 9 | 45 | 8 | 36 |
| Not sure if doctors are communicating | 8 | 21 | 6 | 30 | 7 | 32 |
| Not sure which symptoms to report | 11 | 28 | 5 | 25 | 5 | 23 |
| Worry I am ignoring serious symptoms | 7 | 18 | 3 | 15 | 4 | 18 |
| Do not want to be a “complainer” | 7 | 18 | 2 | 10 | 3 | 14 |
| Worry about being “labeled” | 3 | 8 | 1 | 5 | 1 | 5 |