Table II.
Age of Study Participants and Ages They Remember Learning Their Genetic Risk
| Carrier (N =20) | Noncarrier (N= 18) | At-risk (N = 15) | |
|---|---|---|---|
| Age | mean 18.45 years median 18 years (s.d. 2.5) |
mean 17.8 years median 18.5 years (s.d. 2.7) |
mean 17.9 years median 17 years (s.d. 3.2) |
| Age learned that fragile X was inherited “runs in the family”* | |||
| n (%) | n (%) | n (%) | |
| < 5 years | 0 (0) | 0 (0) | 1 (7) |
| 6–10 years | 3 (15) | 7 (39) | 6 (40) |
| 11–13 years | 6 (30) | 2 (11) | 5(33) |
| 14–18 years | 7 (35) | 2 (11) | 0 |
| >18 years | 1 (5) | 0 | 1 (7) |
| Unable to remember a specific age/ always known |
3 (15) | 7 (39) | 2 (13) |
| Age learned could be a carrier* | |||
| < 5 years | 0 | 0 | 0 |
| 6–10 years | 1 (5) | 7 (39) | 6 (40) |
| 11–13 years | 7 (35) | 5 (28) | 5 (33) |
| 14–18 years | 10 (50) | 3 (17) | 0 |
| >18 years | 1 (5) | 0 | 1 (7) |
| Unable to remember a specific age/always known |
1 (5) | 3 (17) | 2 (13) |
| Age learned actual carrier status (carrier/noncarrier)* | |||
| < 5 years | 0 | 0 | |
| 6–10 years | 2 (10) | 3 (17) | |
| 11–13 years | 5 (25) | 6 (33) | |
| 14–18 years | 8 (40) | 4 (22) | |
| >18 years | 3 (15) | 1 (6) | |
| Unable to remember a specific age/ Always known |
2 (10) | 4 (22) | |
*
Ages are the remembrances of the participants. There is no significant difference in mean ages of the girls (p = .72, Kruskal-Wallis Test) or remembered stages of knowledge (p >.1 Pearson Chi-Square) among the three groups.