Table IV.
Stages of Knowledge FraX-VAS Means (s.d.) and Median
| How did you feel when you first found out you could be a carrier? | ||||
|---|---|---|---|---|
| Carrier n =16* N+ s.d. [median] |
Noncarrier n = 17* N+ s.d. [median] |
At-risk n = 15 N+ s.d. [median] |
p value+ | |
| Upset | 5.9 + 2.7 [5.5] | 5.5 + 2.2 [5.0] | 6.9 + 2.7 [6.8] | 0.38 |
| Scared | 6.6 + 3.1 [7.5] | 5.7 + 2.9 [5.0] | 6.1 + 2.3 [5.0] | 0.65 |
| Relieved | 6.2 + 3.1 [6.1] | 6.1 + 2.6 [5.1] | 5.5 + 1.9 [5.1] | 0.77 |
| Angry | 8.5 + 2.1 [9.7] | 7.2 + 2.4 [7.9] | 7.7 + 2.7 [9.4] | 0.18 |
| Happy | 6.9 + 2.3 [5.4] | 6.9 + 2.4 [5.8] | 5.5 + .88 [5.0] | 0.23 |
| How did you feel when you first found out your carrier status? (omitted for at-risk group) | ||||
| n = 18** | n = 17** | |||
| Upset | 5.4 + 2.9 [5.0] | 8.4 + 2.0 [9.5] | 0.002 | |
| Scared | 5.9 + 3.2 [5.4] | 9.0 + 2.0 [10.0] | 0.003 | |
| Relieved | 5.8 + 2.6 [4.9] | 1.3 + 2.0 [0.2] | 0.003 | |
| Angry | 7.7 + 2.3 [8.6] | 9.0 + 1.7 [10.0] | 0.04 | |
| Happy | 6.1 + 2.5 [5.0] | 1.7 + 2.3 [0.1] | <.0001 | |
| How do you feel now about your carrier status? | ||||
| n = 20 | n = 18 | n = 15 | ||
| Upset | 7.4 + 2.8 [9.0] | 8.7 + 2.3 [9.7] | 8.0 + 2.5 [9.4] | 0.19 |
| Scared | 8.4 + 2.3 [9.5] | 9.1 + 1.8 [10] | 7.5 + 3.0 [9.4] | 0.09 |
| Relieved | 5.8 + 2.9 [5.0] | 1.4 + 2.3 [0.35] | 5.3 +1.7 [5.0] | <.0001++ |
| Angry | 8.8 + 2.1 [9.6] | 9.1 + 2.0 [10.0] | 8.5 + 2.3 [9.7] | 0.31 |
| Happy | 5.5 + 2.4 [5.0] | 1.8 + 2.4 [0.3] | 5.3 + 1.0 [5.0] | <.0001++ |
Anchors are very (0) to not (10). The midpoint of 5 is intermediate.
4 girls who are carriers and 1 noncarrier reported that they had no memory of not knowing so could not answer the question.
Two carriers and one noncarrier reported they had no memory of not knowing their carrier
Significance probability associated with the Kruskal-Wallis Test of the null hypothesis that there is no difference in the distribution of the outcome of interest among the carrier status groups; exact significance probabilities are given for comparisons of carriers and noncarriers at the time they first found out their carrier status.
Data provided evidence that there were differences among the three carrier status groups with respect to the distribution of the VAS. After adjustment for pairwise multiple comparisons among the groups, the noncarrier group was found to differ significantly from the at-risk and carrier groups; the latter two groups could not be said to differ significantly from each other.