Table II.

Participants remember age of learning each of the 3 stages of genetic risk

		Carrier	Noncarrier	At-risk
Learned fragile X was an inherited disorder	0–10 years	3/ 15%	7/ 39%	7/ 47%
	11–13 years	6/30%	2/ 11%	5/ 33%
	14- <18 years	6/ 30%	3/ 17%	0
	≥ 18 years	2/ 10%	0	1/ 7%
	Don’t know/can’t remember	3/10%	6/ 33%	2/ 13%
Learned could be a carrier (could have an affected child)	0–10 years	1/ 5%	6/ 33%	3 / 20%
	11–13 years	7 /35%	6 / 33%	7/ 47%
	14- <18 years	8/ 40%	3/ 17%	2/13%
	≥ 18 years	3 / 15%	0	1/ 7%
	Don’t know/can’t remember	1/ 5%	3/ 17%	2/ 13%
Learned actual carrier status	0–10 years	2/ 10%	3/ 17%	na
	11–13 years	5 /25%	7/ 39%	na
	14- <18 years	7 / 35%	4 /22%	na
	≥ 18 years	4 /20%	1 / 6%	na
	Don’t know/can’t remember	2/ 20%	3/ 17%	na

^*Ages are the remembrances of the participants. There is no significant difference in mean ages of the girls (p = .72, Kruskal-Wallis Test) or remembered stages of knowledge (p >.1 Pearson Chi-Square) among the three groups.