Table 2.

Descriptive statistics and reliability of HRQOL scales (N = 96)^a

Baseline	Number of items	Mean	SD	Percent scoring minimum (= 0)/maximum (= 100)	Cronbach’s alpha
SF-36 v. 1.0 (range: 0–100, where 100 is best quality of life)
Physical Function	10	58.0	30.8	4.2/3.1	0.94
Role Limitations—Physical	4	28.4	35.3	51.0/10.4	0.81
Role Limitations—Emotional	3	76.4	41.9	21.9/75.0	0.98
Pain	2	63.2	26.5	0.0/15.6	0.85
Emotional Well-Being	5	69.7	18.1	1.0/0.0	0.86
Energy	4	47.0	22.8	3.1/0.0	0.92
General Health	5	52.4	22.0	2.1/1.0	0.76
Social Function	2	61.0	33.3	6.3/29.2	0.98
SF-36 composite scores (T-scores)
Physical Health (PCS)	–	36.0	10.5	n/a	0.93b
Mental Health (MCS)	–	49.1	12.0	n/a	0.97b
PDQUALIF (range: 0–100, where 100 is best quality of life)
Social/Role Function	9	52.6	26.0	1.0/1.0	0.88
Self-Image and Sexuality	7	60.3	23.4	0.0/4.2	0.80
Sleep	3	64.6	28.3	2.1/21.1	0.60
Outlook	4	61.1	21.3	0.0/3.2	0.55
Physical Function	5	70.9	17.4	0.0/2.1	0.52
Independence	2	79.2	32.9	11.6/60.0	0.89
Urinary Function	2	39.3	35.4	27.4/10.5	0.85
Total score	–	61.2	18.4	–	0.93b
PDQ-39 (range: 0–100, where 100 is best quality of life)
Mobility	10	62.2	29.3	2.1/5.2	0.93
Activities of Daily Living	6	65.3	25.0	2.1/5.2	0.89
Emotional Well-Being	6	74.3	21.5	1.0/9.4	0.86
Stigma	4	74.6	28.2	1.0/34.4	0.88
Social Support	3	83.2	25.9	2.1/54.2	0.85
Cognitions	4	73.4	20.4	1.0/10.4	0.68
Communication	3	75.8	23.4	1.0/29.2	0.75
Bodily Discomfort	3	62.2	22.7	1.0/7.3	0.59
Total score	–	71.4	18.0	–	0.96b

^aAll the scales scored on a 0 (worst) to 100 (best) possible range, except for the SF-36 PCS and MCS, which are T-scores (mean = 50, SD = 10) calculated against a reference population

^bCalculated using Mosier’s formula