Table 1.
Summary of Themes That Emerged From Disparity-Specific Comprehensive Cancer Control (CCC) Plans (N = 39), United States
| Theme | No. of Plans | Definition | Jursidiction/CCC Plan Example |
|---|---|---|---|
| Participation | 24 | To increase the number or proportion of diverse participants in cancer clinical trials | District of Columbia: Increase the participation of eligible minority residents in cancer-related clinical trials by 15% by 2010 |
| Education, awareness, and outreach | 20 | To provide general information about clinical trials to patients, the public, or other groups through various modes or channels | New Jersey: Educate the public regarding the purpose and importance of participating in clinical trials for cancer, with special emphasis on addressing the concerns of minority populations |
| Availability of trials | 10 | To increase the actual number or types of clinical trials for participation | New York: Increase the number of clinical trials focusing on cancer prevention and control in high-risk populations |
| Best practices | 5 | To use methods, processes, or techniques that are beneficial to diversifying clinical trial participation | Louisiana: Distribute information about the factors that have led to high clinical trial enrollment rates in an indigent, primarily African American population |
| Identifying barriers | 5 | To assess the specific factors that inhibit patients from participating in clinical trials | Arizona: Identify barriers that inhibit participation in clinical trials within minority populations |
| Partnerships and collaborations | 5 | To aim to develop relationships with organizations, institutions, or other groups | Oregon: Increase the enrollment of underserved populations in clinical trials by developing community-based partnerships that work with culturally diverse and underserved communities |
| Physician involvement | 5 | To engage physicians or providers as a strategy for educating or recruiting patients to clinical trials | California: Increase the awareness of community oncologists of the need for participation of diverse groups in clinical trials by encouraging those efforts in oncology associations |
| Financial support | 4 | To advocate for resources that aim to decrease the nonroutine costs associated with clinical trial participation for patients | Colorado: Develop interventions to alleviate the financial cost of participation in clinical trials studying treatment, supportive care, and quality of life for underserved and underinsured cancer patients |
| Funding | 4 | To advocate for broad-level resources to address nonroutine costs associated with clinical trial participation | New Mexico: Establish polices to ensure that funding is available for necessary follow-up care for those living in tribal communities who are screened for cancer through clinical trials and government-supported screening programs |
| Culturally appropriate information | 3 | To explicitly state the incorporation of culturally or linguistically specific information into the design or dissemination of clinical trials information | Indiana: Provide information about clinical trials in a culturally sensitive manner, including consent forms that are tailored to meet the patients' reading levels |