Table 3.
Average scores for presence (a) and unbearability (b) of the individual SOS-V aspect in the first interviews (n = 64)*
| Aspect | a. | b. | Aspect | a. | b. |
| Domain I | Domain II | ||||
| 1 General discomfort | 2.4 | 2.4 | 38 Impaired working capacity | 1.7 | 1.6 |
| 2 Tired | 3.2 | 2.7 | 39 Impaired in daily activities | 3.2 | 3.2 |
| 3 Weakened | 3.1 | 2.9 | 40 Impaired leisure activities | 3.2 | 2.8 |
| 4 Not sleeping well | 1.9 | 1.8 | 41 Needing help housekeeping | 3.4 | 2.7 |
| 5 Pain | 2.3 | 2.2 | 42 Needing help self-care | 1.9 | 1.6 |
| 6 Loss of appetite | 2.3 | 2.0 | 43 Bedridden | 2.1 | 2.0 |
| 7 Thirst | 2.1 | 1.5 | 44 Restricted sexuality | 2.0 | 1.5 |
| 9 Smelling unpleasant | 1.6 | 1.5 | Domain III | ||
| 10 Impaired mental clarity | 1.9 | 1.9 | 45 Not satisfied with own self | 1.3 | 1.2 |
| 11 Concentration loss | 2.1 | 1.9 | 46 Lived life with little purpose | 1.3 | 1.1 |
| 12 Memory loss | 2.0 | 1.7 | 47 Little success in life | 1.2 | 1.2 |
| 13 Feeling tense | 1.9 | 1.7 | 48 Little happiness with family | 1.4 | 1.4 |
| 14 Feeling depressed | 1.5 | 1.4 | 49 Trouble accepting situation | 2.2 | 2.3 |
| 15 Feeling anxious | 1.4 | 1.3 | 50 Negative thoughts or worrying | 1.7 | 1.7 |
| 16 Shortness of breath | 2.1 | 2.7 | 51 Feelings of guilt | 1.2 | 1.2 |
| 17 Coughing | 1.5 | 1.3 | 52 Feelings of worthlessness | 1.4 | 1.4 |
| 18 Swallowing [..] food | 1.6 | 1.6 | 53 Feelings of loneliness | 1.5 | 1.3 |
| 19 Swallowing [..] fluid | 1.3 | 1.4 | 54 Feelings of hopelessness | 1.5 | 1.5 |
| 20 Nausea | 1.5 | 1.6 | 55 Feeling no longer same person | 1.5 | 1.4 |
| 21 Vomiting | 1.4 | 1.6 | 56 Feeling tired of life | 1.2 | 1.3 |
| 22 Constipation | 1.6 | 1.5 | 57 Feeling dependent of others | 2.8 | 2.6 |
| 23 Diarrhoea | 1.2 | 1.2 | 58 Feeling loss of control life | 1.6 | 1.7 |
| 24 Intestinal cramps | 1.4 | 1.4 | 59 Feeling being a nuisance | 1.7 | 1.7 |
| 25 Incontinence of urine | 1.3 | 1.3 | 60 Feeling not important to others | 1.3 | 1.3 |
| 26 Incontinence of faeces | 1.1 | 1.1 | 61 Doing Important things not possible | 2.6 | 2.6 |
| 27 Hiccups | 1.3 | 1.4 | Domain IV | ||
| 28 Pressure ulcers | 1.1 | 1.1 | 62 Not supported sufficiently | 1.1 | 1.1 |
| 29 Itch | 1.4 | 1.3 | 63 Lonely/people not there for you | 1.4 | 1.4 |
| 30 Skin metastasis | 1.1 | 1.0 | 64 Feelings of shame | 1.1 | 1.1 |
| 31 Paralyzed limbs | 1.1 | 1.1 | 65 Close ones consider suffering severe | 1.6 | 1.6 |
| 32 Impaired coordination | 2.0 | 2.0 | 66 Unsatisfactory contact close ones | 1.2 | 1.2 |
| 33 Incomprehensible speech | 1.6 | 1.7 | 67 Insufficient availability of care | 1.4 | 1.4 |
| 34 Impaired comprehension speech | 1.1 | 1.1 | Domain V | ||
| 35 Dizziness | 1.5 | 1.5 | 68 Fear of future suffering | 1.9 | 2.0 |
| 36 Impaired sight | 1.7 | 1.6 | 69 No longer having strength to suffer | 1.8 | 1.8 |
| 37 Impaired hearing | 1.8 | 1.7 |
* Average of score between 1 (not at all) and 5 (very seriously); if an aspect was not at all present (a), it was scored also as not at all unbearable (b). Missing observations between 6 and 9