Table 1.
Sensitivity of self-reported history of breast cancer (based on women with questionnaires from 1996–2006 in the Breast Cancer Surveillance Consortium; 24,631 women with a prior breast cancer; 20,303 with a prior invasive cancer, 4,328 with a prior DCIS)
| Sensitivitya Main Analysis |
Sensitivitya Subanalysisb |
|||||||||
|---|---|---|---|---|---|---|---|---|---|---|
| Variable | Distribution |
All |
Invasive |
DCIS |
||||||
| No. | (%) | % | 95% CI | % | 95% CI | % | 95% CI | % | 95% CI | |
| Overall | 24,631 | 100.0 | 95.7 | 95.5–96.0 | 96.9 | 96.6–97.1 | 90.2 | 89.3–91.1 | 96.2 | 95.9–96.6 |
| Residence | ||||||||||
| Urban | 20,281 | 82.3 | 95.5 | 95.2–95.8 | 96.8 | 96.5–97.1 | 89.5 | 88.5–90.5 | 96.2 | 95.8–96.6 |
| Rural | 4,350 | 17.7 | 96.6 | 96.0–97.1 | 97.3 | 96.7–97.8 | 93.4 | 91.4–95.0 | 96.3 | 95.6–97.0 |
| Age at questionnaire, years | ||||||||||
| 18–39 | 492 | 2.0 | 98.2 | 96.6–99.2 | 98.9 | 97.4–99.6 | 91.5 | 79.6–97.6 | 99.0 | 96.3–99.9 |
| 40–49 | 3,205 | 13.0 | 96.1 | 95.4–96.8 | 97.3 | 96.6–97.9 | 91.7 | 89.3–93.7 | 96.7 | 95.8–97.5 |
| 50–59 | 6,304 | 25.6 | 96.8 | 96.3–97.2 | 97.8 | 97.4–98.2 | 92.4 | 90.8–93.8 | 96.8 | 96.2–97.4 |
| 60–69 | 6,000 | 24.4 | 96.1 | 95.6–96.6 | 97.2 | 96.7–97.7 | 90.9 | 89.0–92.6 | 96.9 | 96.2–97.5 |
| 70–79 | 5,514 | 22.4 | 95.1 | 94.5–95.7 | 96.4 | 95.9–97.0 | 88.3 | 86.0–90.3 | 95.4 | 94.4–96.2 |
| ≥80 | 3,116 | 12.7 | 93.1 | 92.2–94.0 | 94.6 | 93.7–95.4 | 83.5 | 79.6–86.9 | 93.4 | 91.9–94.8 |
| Race/ethnicity | ||||||||||
| White, non-Hispanic | 19,425 | 78.9 | 96.7 | 96.4–96.9 | 97.5 | 97.3–97.8 | 92.5 | 91.6–93.4 | 97.1 | 96.7–97.4 |
| African American, non-Hispanic | 817 | 3.3 | 92.7 | 90.6–94.3 | 96.0 | 94.2–97.3 | 77.6 | 69.9–84.0 | 92.4 | 88.8–95.1 |
| Hispanic | 1,364 | 5.5 | 93.4 | 92.0–94.7 | 94.8 | 93.4–96.0 | 85.2 | 79.6–89.8 | 91.7 | 88.9–94.0 |
| Asian/Pacific Islander | 2,415 | 9.8 | 91.0 | 89.8–92.1 | 93.5 | 92.3–94.6 | 82.8 | 79.4–85.8 | 92.3 | 90.4–93.8 |
| Native American | 172 | 0.7 | 90.1 | 84.6–94.1 | 93.2 | 87.8–96.7 | 72.0 | 50.6–87.9 | 97.4 | 86.5–99.9 |
| Mixed/other | 438 | 1.8 | 95.0 | 92.5–96.8 | 96.1 | 93.6–97.9 | 89.5 | 80.3–95.3 | 93.7 | 89.9–96.4 |
| Education | ||||||||||
| Some high school or less | 2,246 | 9.1 | 91.0 | 89.7–92.1 | 92.5 | 91.3–93.7 | 82.5 | 78.2–86.3 | 93.0 | 91.2–94.6 |
| High school graduate | 5,665 | 23.0 | 94.8 | 94.2–95.3 | 96.4 | 95.8–96.9 | 87.0 | 84.7–89.0 | 95.0 | 94.1–95.8 |
| Some college | 6,565 | 26.7 | 96.5 | 96.0–96.9 | 97.5 | 97.1–97.9 | 91.4 | 89.6–93.0 | 96.7 | 96.0–97.3 |
| College or postgraduate | 10,155 | 41.2 | 96.8 | 96.4–97.1 | 97.8 | 97.4–98.1 | 92.6 | 91.3–93.7 | 97.3 | 96.8–97.7 |
| Family history of breast cancer | ||||||||||
| No | 18,818 | 76.4 | 95.4 | 95.1–95.7 | 96.6 | 96.3–96.8 | 89.7 | 88.6–90.8 | 96.1 | 95.7–96.5 |
| Yes | 5,813 | 23.6 | 96.8 | 96.4–97.3 | 98.0 | 97.5–98.4 | 91.7 | 89.8–93.3 | 96.5 | 95.7–97.2 |
| Type of prior breast cancer (most advanced) | ||||||||||
| Invasive | 20,303 | 82.4 | 96.9 | 96.6–97.1 | 97.5 | 97.2–97.8 | ||||
| DCIS | 4,328 | 17.6 | 90.2 | 89.3–91.1 | 91.2 | 90.0–92.4 | ||||
| Time since most recent breast cancer, years | ||||||||||
| 1–2 | 9,421 | 38.2 | 96.1 | 95.6–96.4 | 97.0 | 96.6–97.3 | 92.1 | 90.8–93.3 | 95.9 | 95.4–96.3 |
| 3–4 | 5,342 | 21.7 | 95.7 | 95.1–96.2 | 97.2 | 96.7–97.7 | 88.9 | 86.8–90.8 | 96.8 | 96.1–97.4 |
| 5–9 | 5,766 | 23.4 | 95.5 | 94.9–96.0 | 96.9 | 96.4–97.4 | 88.6 | 86.5–90.5 | 96.6 | 95.7–97.4 |
| ≥10 | 4,102 | 16.7 | 95.3 | 94.6–95.9 | 96.3 | 95.6–96.9 | 89.1 | 86.3–91.6 | 93.8 | 69.8–99.8 |
| Tumor size, mmc | ||||||||||
| <11 | 4,965 | 28.6 | 96.8 | 96.3–97.3 | ||||||
| 11–15 | 4,212 | 24.2 | 97.6 | 97.1–98.1 | ||||||
| 16–20 | 2,992 | 17.2 | 97.7 | 97.1–98.2 | ||||||
| >20 | 5,218 | 30.0 | 97.3 | 96.8–97.7 | ||||||
| Missing | 2,916 | |||||||||
| AJCC tumor staged | ||||||||||
| Stage I | 9,855 | 56.2 | 97.2 | 96.8–97.5 | ||||||
| Stage II | 6,572 | 37.5 | 97.5 | 97.1–97.9 | ||||||
| Stage III or IV | 1,100 | 6.3 | 96.7 | 95.5–97.7 | ||||||
| Missing | 2,776 | |||||||||
CI, confidence interval; DCIS, ductal carcinoma in situ; AJCC, American Joint Committee on Cancer.
Sensitivity = (women with prior breast cancer in database and with a self-report of a prior breast cancer)/(women with a prior breast cancer in database).
Subanalysis is based on questionnaires from women with a diagnosis of breast cancer after an initial accurate report of no prior history of breast cancer (includes 11,217 women).
Based on prior invasive cancer with largest tumor size.
Based on prior invasive cancer with highest AJCC tumor stage.