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. Author manuscript; available in PMC: 2010 Oct 1.
Published in final edited form as: Pediatr Blood Cancer. 2009 Oct;53(4):629–634. doi: 10.1002/pbc.22125

Table I.

Demographics

Age of onset Gender Age at initial
evaluation
Age (yrs) at most
recent evaluation
Disease variant Clinical outcome
At diagnosis At follow up
1 6m F 3y 24 UP UP Major regression
2 3m M 11m 21 UP Resolved Complete regression
3 6m M 3y 23* UP Resolved Complete regression
4 3m F 3y 19 UP UP Major regression
5 2y F 8y 26 UP UP Major regression
6 2y M 5y NF UP Unknown Unknown
7 1m M 2y 23* UP Resolved Complete regression
8 4d M 1y 21 UP Resolved Complete regression
9 3m M 3m 21 DCM Resolved Complete regression
10 1y M 3y 17 UP Resolved Complete regression
11 birth M 5m 18 DCM DCM Partial regression
12 6w M 4y 24* UP Resolved Complete regression
13 2m M 6m 20 UP Resolved Complete regression
14 birth M 6m 20 UP UP/ISM Partial regression
15 3m M 3y 18 UP Resolved Complete regression
16 4m M 7m NF UP Unknown Unknown
17 birth M 3y 19 UP Resolved Complete regression

d-days, w-weeks, m-months, y-years; UP-Urticaria Pigmentosa, NF-no follow up, DCM-Diffuse Cutaneous Mastocytosis, and ISM-Indolent Systemic Mastocytosis

*

Contacted by phone only

Patient’s initial marrow re-read as diagnostic of indolent systemic mastocytosis