Table 1.
Characteristics of the Study Group
| Characteristic | Patients (N = 58) |
|
|---|---|---|
| No. | % | |
| Primary caregiver | ||
| Mother | 53 | 91.4 |
| Father | 5 | 8.6 |
| Sex | ||
| Male | 33 | 56.9 |
| Female | 25 | 43.1 |
| Ethnicity | ||
| Parent | ||
| White | 26 | 44.8 |
| Black | 7 | 12.0 |
| Other | 3 | 5.1 |
| Unknown | 22 | 37.9 |
| Patient | ||
| White | 38 | 65.5 |
| Black | 12 | 20.7 |
| Biracial | 3 | 5.2 |
| Asian | 1 | 1.7 |
| Other | 4 | 6.9 |
| Age, years | ||
| Parent | ||
| Mean | 37.6 | |
| SD | 7.8 | |
| Median | 38.2 | |
| Range | 19.7-55.2 | |
| Patient | ||
| Mean | 11.3 | |
| SD | 6.2 | |
| Median | 11.4 | |
| Range | 0.6-21.6 | |
| Diagnosis | ||
| Solid tumor | 30 | 51.7 |
| Brain tumor | 21 | 36.2 |
| Leukemia | 7 | 12.1 |
| Decision made | ||
| Phase I study | ||
| Yes | 30 | 51.7 |
| No | 0 | 0.0 |
| DNR | ||
| Yes | 17 | 29.3 |
| No | 1 | 1.7 |
| Terminal care | ||
| Yes | 9 | 15.5 |
| No | 1 | 1.7 |
Abbreviations: SD, standard deviation; DNR, do not resuscitate.