Table 1.
Characteristics of the patients
| Whole sample n = 136 |
Test-retest sample n = 20 (subgroup) |
Benchmarking population n = 293 | |
|---|---|---|---|
| Age of the child in years (mean) | 10.2 (SD 1.9) (range 6-13) |
9.6 (SD 2.6) (range 6-13) |
9.8 (SD 2.3) (range 6-13) |
| FEV1 (mean) | 86% (SD 19) (range 31-125) |
81% (SD 21) (range 41-109) |
94% (SD 20) (range 31-159) |
| Percentage of children with FEV1>80% | 68% | 50% | 80% |
| WH (mean) | 97% (SD 12) (range 68-141) |
94% (SD 9) (range 78-108) |
99% (SD 12) (range 68-146) |
| Percentage of children with WH >90% | 74% | 65% | 80% |
| Boys | 55% | 75% | 49% |
| Mother completing CFQ-R-Parent | 71% | 85% | |
| Father completing CFQ-R-Parent | 27% | 15% | |
| Other person completing CFQ-R-Parent | 1% | - |
FEV1 forced expiratory volume in one second in % predicted
WH weight for height in % predicted
Benchmarking population: Population of children with cystic fibrosis assessed in a project that was initiated to improve the quality of care for patients in Germany. The project was described by Stern et al. [2]