Table 4:
Conditions for which studies were completed by national paediatric surveillance units at January 1999, and approvals for future studies
| Condition | Unit performing surveillance | |
|---|---|---|
| Completed studies | Approved studies | |
| Acute flaccid paralysis | BPSU | |
| Acute liver failure | MPSU | |
| AIDS in childhood | BPSU | |
| Anaphylaxis | CPSP | |
| Androgen insensitivity syndrome | BPSU | |
| Autoimmune hepatitis | ESPED | |
| Arthrogryposis multiplex congenita | APSU | |
| Cerebral edema in diabetic ketoacidosis | CPSP | |
| CHARGE association | APSU | |
| Chemistry set poisoning | BPSU | |
| Childhood dementia | APSU | |
| Congenital adrenal hyperplasia | APSU | |
| Congenital cytomegalovirus infection | APSU | |
| Congenital cataracts | BPSU | |
| Congenital dislocation of the hip | BPSU | |
| Congenital and neonatal varicella | APSU | |
| Congenital rubella | NSCK | |
| Congenital syphilis | BPSU | |
| Congenital toxoplasmosis | BPSU, SPSU | |
| Cystic periventricular leukomalacia | SPSU | |
| Drowning or near-drowning | APSU, BPSU | |
| Extrahepatic biliary atresia | APSU, BPSU | |
| Fatal or near fatal asthma | ESPED | |
| Galactosemia | BPSU | |
| Group B streptoccal infection | CPSP | |
| Hemophagocytic lymphohistiocytosis | BPSU | |
| Hemolytic uremic syndrome | BPSU (study recommenced in 1997) | SPSU |
| Hemorrhagic disease of the newborn (includes vitamin K deficiency bleeding) | NSCK | BPSU |
| Herpes 6/7 virus infection | BPSU | |
| High order births | BPSU | |
| Hemorrhagic shock encephalopathy syndrome | BPSU, ESPED | |
| Idiopathic interstitial lung disease | CPSP | |
| Idiopathic thrombocytopenia | ESPED | |
| Insulin-dependent diabetes mellitus | BPSU | |
| Invasive Haemophilus influenzae infection | ESPED, NSCK | APSU |
| Irregular blood group reactions (non-D, non-ABO) | NSCK | |
| Juvenile dermatomyositis | BPSU | |
| Kawasaki disease | APSU, BPSU, ESPED | LPSU, MPSU |
| Long term total parenteral nutrition | BPSU | |
| Lowe syndrome | BPSU | |
| Medium chain acyl CoA dehydrogenase deficiency | BPSU | |
| Measles-mumps-rubella vaccine-associated meningoencephilitis | BPSU | |
| Munchausen syndrome by proxy and/or nonaccidental poisoning and suffocation | BPSU | APSU |
| Nephrotic syndrome (congenital and idiopathic) | APSU | |
| Neonatal thrombosis | ESPED | |
| Neonatal meningitis | BPSU | |
| Neonatal necrotising enterocolitis | BPSU | |
| Neural tube defects | CPSP | |
| Ondine’s curse | ESPED | |
| Perinatal hemocromatosis | CPSP | |
| Postneonatal mortality in premature babies | NSCK | |
| Pyridoxine-dependent status epilepticus | BPSU | CPSP |
| Rett syndrome | APSU, BPSU | Repeat study APSU |
| Reye syndrome | ESPED | |
| Rheumatic fever | BPSU, NSCK | |
| Rickets | CPSP | |
| Sickle cell disease | NSCK | |
| Thalassemia major | NSCK, PNGPSU | |
| Tic-borne encephalitis | ESPED | |
| Transient and permanent neonatal diabetes mellitus | BPSU | |
| Visual impairment and blindness | BPSU | |
| Water births | BPSU | |
| X-linked anhydrotic ectodermal dysplasia | BPSU | |
AIDS Acquired immunodeficiency syndrome; APSU Australian Paediatric Surveillance Unit; BPSU British Paediatric Surveillance Unit; CHARGE Coloboma, heart defects, atresia choanae, retardation of growth and development and/or central nervous system anomalies, genital anomalies and/or hypogonadism, and ear anomalies and/or hearing loss; CPSP Canadian Paediatric Surveillance Program; ESPED Erhebungseinheit fur Seltene Padiatrische Erkrankungen in Deutschland; LPSU Latvian Paediatric Surveillance Unit; MPSU Malaysian Paediatric Surveillance Unit; NSCK Nederlands Signalerings-Centrum Kindergeneeskunde; NZPSU New Zealand Paediatric Surveillance Unit; PNGPSU Papua New Guinea Paediatric Surveillance Unit; SPSU Swiss Paediatric Surveillance Unit