Table 2.
Pre- and post-intervention scores of the patients and the caregivers
| Scale | Patientsa | Caregivers | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|
| n | Before | After | T | p | n | Before | After | T | p | |
| BELA-P/A-k | ||||||||||
| Total Bb | 103 | 26.7 (15.6) | 21.0 (14.7) | 4.8 | <0.001 | 77 | 17.7 (11.1) | 13.4 (11.5) | 2.8 | 0.006 |
| Total Nfh | 102 | 34.9 (17.2) | 27.5 (16.6) | 5.5 | <0.001 | 74 | 22.7 (13.2) | 1.1 (0.9) | 14.6 | <0.001 |
| Achievement capability | ||||||||||
| Bb | 108 | 8.3 (4.5) | 6.7 (4.7) | 4.2 | <0.001 | 88 | 5.1 (3.3) | 4.0 (3.4) | 2.7 | 0.008 |
| Nfh | 108 | 10.7 (4.7) | 8.4 (5.0) | 5.5 | <0.001 | 86 | 6.5 (4.2) | 4.8 (3.8) | 3.0 | 0.004 |
| Emotional functioning | ||||||||||
| Bb | 110 | 6.7 (3.9) | 5.0 (3.5) | 5.3 | <0.001 | 94 | 6.1 (3.7) | 4.3 (3.4) | 3.7 | <0.001 |
| Nfh | 110 | 8.5 (4.4) | 6.4 (3.9) | 5.2 | <0.001 | 91 | 7.6 (4.0.) | 5.2 (3.8) | 4.1 | <0.001 |
| Social functioning | ||||||||||
| Bb | 104 | 6.1 (4.7) | 4.7 (4.3) | 3.6 | 0.001 | 80 | 4.3 (3.5) | 2.8 (2.8) | 3.4 | 0.001 |
| Nfh | 104 | 7.9 (5.2) | 6.2 (5.0) | 4.2 | <0.001 | 78 | 5.0 (3.9) | 3.7 (3.3) | 2.3 | 0.027 |
| Partner/family | ||||||||||
| Bb | 90 | 5.7 (5.2) | 4.6 (4.0) | 2.8 | 0.006 | 67 | 3.2 (2.7) | 2.4 (2.6) | 1.3 | NS |
| Nfh | 91 | 7.6 (5.7) | 6.1 (4.7) | 3.2 | 0.002 | 65 | 4.3 (3.3) | 3.0 (3.1) | 2.2 | 0.033 |
| EQ-5D VASb | – | – | – | – | – | 42 | 69.1 (19.2) | 75.6 (20.5) | −1.6 | NS |
| PDQ-39 SI | 133 | 30.8 (16.2) | 30.7 (7.7) | −0.3 | NS | – | – | – | – | |
| SDS | 122 | 42.4 (8.6) | 42.7 (10.6) | −0.4 | NS | 118 | 39.2 (9.4) | 38.3 (8.7) | 0.6 | NS |
Values are mean (SD), unless otherwise indicated. In the BELA-P/A-k, lower scores reflect less psychosocial problems or need for help. Lower scores on the EQ-5D VAS reflect worse health state. Higher scores on the PDQ-39 reflect worse quality of life. In the SDS, lower scores reflect less depressive complaints
Abbreviations: BELA-P/A-k Belastungsfragebogen Parkinson (Angehörigen) kurzversion, Bb Bothered by scale, Nfh Need for help scale, PDQ-39 SI Parkinson’s Disease Questionnaire-39 items Summary Index, EQ-5D EuroQol-5D, VAS visual analogue scale, SDS Self-rating Depression Scale
aPatients’ data are derived from the study of Macht et al. [24], except for the ‘need for help scale’ data
bThe EQ-5D VAS (n = 42) was not assessed in Spain (n = 38), Italy (n = 17), the Netherlands (n = 16) and Estonia (n = 18)