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. Author manuscript; available in PMC: 2010 Jan 27.
Published in final edited form as: J Genet Couns. 2008 Mar 18;17(4):327–335. doi: 10.1007/s10897-008-9151-6

Table 3.

Huntington Disease Resources for Teens

The Huntington Society of America
National Youth Alliance (NYA)
http://get-me.to/NYA
The purpose is to provide a support network for youth with Huntington Disease in their lives and
bring attention and understanding of Huntington Disease in the community
Gray, A. (2003). HD and me: A guide for young people.
http://endoflifecare.tripod.com/livingwith he/id17.html. This 58-page book directed at young
people living in a family with HD offers strategies for coping with daily challenges.
Hennig, B (2004) Talking to Kids About Huntington Disease
www.talkingtokidsabouthd.com/book.htm
A 45-page book designed for caregivers of children and teens who have a loved one affected by
HD.