Table 1.

Baseline Patient and Postmortem Caregiver Interview Questions

Question	Item Response Option
Baseline patient interview
Medical system spiritual care items
To what extent are your religious/spiritual needs being supported by the medical system (eg, doctors, nurses, chaplains)?	Not at all
	To a small extent
	To a moderate extent
	To a large extent
	Completely supported
Have you received pastoral care services within the clinic or hospital?	Yes or No
Religious community spiritual support items
To what extent are your religious/spiritual needs being supported by your religious community (eg, clergy, members of your congregation)?	Not at all
	To a small extent
	To a moderate extent
	To a large extent
	Completely supported
Have you been visited by a member of the clergy from outside of the hospital system?	Yes or No
Patient–physician relationship items
Do you think your doctors see you as a whole person?	Yes or No
Do you think your doctors here treat you with respect?	Yes or No
Do you respect your doctors here?	Yes or No
Do you trust your doctors here?	Yes or No
How comfortable are you asking your doctor questions about your care?	Very uncomfortable
	Fairly uncomfortable
	Neither comfortable or uncomfortable
	Fairly comfortable
	Very comfortable
Baseline end-of-life care items
Have you and your doctor discussed any particular wishes you have about the care you would want to receive if you were dying?	Yes or No
Do you have a signed: (1) living will, (2) health care proxy and/or durable power of attorney, (3) both, or (4) neither?	1, 2, 3, or 4
If you could choose, would you prefer: (1) a course of treatment that focused on extending life as much as possible, even if it meant more pain and discomfort, or (2) a plan of care that focused on relieving pain and discomfort as much as possible, even if that meant not living as long?	1 or 2
Postmortem caregiver interview
Quality-of-life near-death items
In your opinion, just before the death of the patient (his/her last week, or when you last saw the patient), how would you rate his/her level of psychological distress?	0 (no distress) to 10 (extremely upset)
In your opinion, just before the death of the patient (his/her last week, or when you last saw the patient), how would you rate his/her level of physical distress?	0 (no distress) to 10 (extremely distressed)
In your opinion, how would you rate the overall quality of the patient's death/last week of life?	0 (worst possible) to 10 (best possible)